The experiences of primary caregivers caring for children with physical disabilities in Hardap region of Namibia

Type Thesis or Dissertation - Master of Arts in Social Work
Title The experiences of primary caregivers caring for children with physical disabilities in Hardap region of Namibia
Author(s)
Publication (Day/Month/Year) 2016
URL http://146.141.12.21/bitstream/handle/10539/20745/ALLAN FINAL DISSERTATION 2016​MARCH.pdf?sequence=1&isAllowed=y
Abstract
Child disability has not been addressed holistically in Namibia. The absence of policies and
programmes has exacerbated the challenges faced by primary caregivers and children with
physical disabilities. There is paucity of literature on the experiences faced by the caregivers of
children with physical disabilities. The aim of this study was to explore the experiences of
primary caregivers of children with physical disabilities in Hardap region, Namibia. The study
population consisted of primary caregivers of children with physical disabilities from Hardap
region and purposive sampling was used to select 20 participants. A qualitative research
approach was used to collect data using a semi-structured interview schedule. The study was
descriptive and exploratory in nature. The study was based on a case study of Hardap region,
Namibia where it sought to bring an understanding of complex issues to add strength to what is
already known through previous researches. Thematic content analysis was used to analyse the
data. The study revealed that participants played important roles in providing care as they were
involved in feeding, carrying, turning and lifting of the children as well as taking the children for
medical check-ups. The study also revealed that participants experienced challenges in the care
continuum which included carrying the children around due to lack of special equipment,
financial challenges and lack of psychosocial support from the family. The study also noted that
the participants used religion as a means of coping for their wellbeing. The Government of
Namibia needs to set policies on disability issues to ensure the wellbeing of the primary
caregivers. The caregivers need training that will help them to improve the quality of care
offered to children with physical disabilities as well as improve the psychosocial functioning of
the primary caregivers. It is thus anticipated that the results of the study will help in designing
interventions that will help the primary caregivers and reduce their burdens. The study will also
contribute to knowledge on disability and caregiving.

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