ZWE_2002_LCPAL_v01_M
Survey on Living Conditions Among People with Activity Limitations 2002-2003
Name | Country code |
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Zimbabwe | ZWE |
Other Household Survey [hh/oth]
The initiative to carry out the studies in in southern Africa was developed in a joint project between Southern Africa Federation of the Disabled (SAFOD), the Norwegian Federation of Organisations of Disabled People (FFO), and SINTEF Health Research. The first seven representative studies are part of a regional initiative to establish baseline data on living conditions among people with disabilities in Southern Africa.
The Namibian survey was carried out in 2001–2002, Zimbabwe in 2002–2003, Malawi in 2003–2004, Zambia in 2005–2006, Mocambique in 2007–2008, Swaziland and Lesotho in 2009–2010. Botswana started in 2011 and will be finalized in 2014. A new study was initiated in Angola in 2013.
SINTEF has also carried out two similar studies with different funding sources. In 2005–2006 a regional study (Eastern and Western Cape) was carried out in South Africa. In 2013–2014 SINTEF has carried out a second study in Zimbabwe, funded by UNICEF and in collaboration with Ministry of Child Health and Welfare.
Major stakeholders in the countries are the following:
Namibia: National Federation of Disabled People in Namibia (NFDPN), University of Namibia, Multidisciplinary Research and Consultancy Centre (MRCC), and Ministry of Lands, Resettlement and Rehabilitation.
Zimbabwe
2003: National Council of Disabled Persons of Zimbabwe (NCDPZ), University of Zimbabwe, Departments of Psychiatry and Rehabilitation, and Ministries of Health and Child Welfare and Social Welfare.
2013–14: United Nations Childrden's Fund (UNICEF), Ministry of Child and Health Welfare.
Malawi: Federation of Disability Organisations in Malawi (FEDOMA), University of Malawi, Centre for Social Research (CSR), and Ministry responsible for People with Disabilities in the Office of the President.
Zambia: Zambia Federation of the Disabled (ZAFOD), University of Zambia, Institute of Economic and Social Research (INESOR) and Central Statistic Office (CSO).
South Africa: University of Cape Town.
Mozambique: Fórum das Associações Moçambicanas dos Deficientes (FAMOD), The National Statistics Institute (INE) and Universidade Eduardo Mondlane (UEM).
Lesotho: Lesotho National Federation of Organizations of the Disabled (LNFOD), Central Bureau of Statistics.
Swaziland: The Federation of Organizations of the Disabled in Swaziland (FODSWA) , Central Statistical Office.
Botswana: The Botswana Federation of the Disabled (BOFOD), SAFOD, University of Botswana, Statistics Botswana, Office of the President.
Nepal: The National Federation of the Disabled in Nepal (NFDN), Ministry of Health (MOH), Ministry of Women, Children and Social Welfare (MOWCSW), National Planning Commission (NPC), Ministry of Education (MOE), Valley Research Group(VARG) and Central Bureau of Statistics (CBS).
Disability and society: The last 20–30 years have seen an important change in our understanding of disability. From a previous individual perspective on causes and interventions, a social and civil rights approach has taken over. Much of the focus is now on the human and physical environment and how this might reduce or enhance an individual’s level of activity and social participation.
National policy development aimed at improving living conditions in general and among people with disabilities in particular is dependent on the availability of quality data. In many countries these have been lacking, and both the United Nations and National authorities have emphasised the need for this information in order to further develop disability policies.
Information about people with disabilities and their living conditions has the potential for contributing to an improvement of the situation faced by this group in many low-income countries, as has been demonstrated in high-income countries. The Studies on Living Conditions Among People with Activity Limitations in Developing Countries have been applied to inform policy development, for capacity building, awareness creation, and in specific advocacy processes to influence service delivery.
The studies have demonstrated that level of living conditions among disabled people is systematically lower than among non-disabled people. This implies that people with disabilities are denied the equal opportunities to participate and contribute to their society. It is in this context that people with disabilities are denied their human rights.
In Zimbabwe, the developmental objective for this project has been to contribute to the improvement of disabled people's living conditions, including also their level of social participation.
Specific aims include:
For the study on living conditions, specific objectives or research topics have been:
In Zimbabwe, the study has been carried out as three consecutive surveys in three regions covering 44 % of the population. The reason for this step-wise procedure is found in the rather difficult political and economic situation in Zimbabwe during the research period. Due to time and financial constraints, the entire country could not be surveyed. Although this is a weakness as compared to a full National study, it is reassuring that the results from the three regional studies are for the most part similar. It is thus likely that including more regions in the study would not uncover new patterns, particularly not with respect to the main results.
Sample survey data [ssd]
The scope of the Survey on Living Conditions Among People with Activity Limitations includes:
DISABLED AND NON-DISABLED INDIVIDUALS : Activity limitations, Burden of disease, Education and literacy, Employment/economic activity, Income and expenses, Mortality
INDIVIDUAL CASE AND CONTROL: Activity limitations, Environmental barriers, Marital status, Health, Causes of disability, Violence and discrimination, Service gaps, Education (15 years and older)
Employment and income, Medication, Assistive devices, Thoughts and feelings about being a person with disability, Social support, Involvement in family and social life, Health and well-being, Knowledge and understanding of some common diseases.
Three regional areas: Matabeleland,Manicaland and Midlands.
The target population for sampling was all private households in Zimbabwe excluding institutionalised and homeless people.
Name |
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The Foundation for Scientific and Industrial Research - SINTEF Unimed |
Southern Africa Federation of Disabled People (SAFOD) |
Norwegian Federation of Organisations of Disabled People (FFO) |
Name | Affiliation |
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National Council of Disabled Persons of Zimbabwe | |
Departments of Psychiatry and Rehabilitation | University of Zimbabwe |
Ministries of Health and Child Welfare and Social Welfare | Government of Zimbabwe |
Name |
---|
Norwegian Agency for Development Cooperation |
Atlas Alliance |
A two-stage cluster sampling procedure was applied using the National sampling frame in each country, in close collaboration with the National statistical offices who also did sample size calculations to ensure representativity at regional/provincial level. A required number of geographical units (often called Enumeration Areas, EAs) are thus sampled, with all households in these areas included in the first stage of the sampling. Then follows screening where all households in the selected areas are interviewed (normally the head of the household) using the WG 6 screening instrument.
Sampling in Zimbabwe:
A two-stage stratified sampling was carried out with enumeration areas as strata. A total of 1943 households with disabled members and 1958 households without disabled members were sampled in three regional areas: Matabeleland,Manicaland and Midlands. A total of 21712 individuals in the 3901 households were sampled within the three regions. These three regions cover 5 out of 10 Provinces in the country and approximately 44 % of the total population of Zimbabwe. The total population of the three regions is 5.1 million. The population of the selected enumeration areas in the three regions is 69821.
The second step in the sampling procedure was screening for disability by interviewing primarily the heads of all households in the sampled enumeration areas. This exercise (termed "listing") was also carried out by Central Statistical Office. A common approach to screening for disabilities in the censuses of many low-income countries is by asking for specific impairments. The approach used in this survey was, however, based on an understanding of disability as difficulties in doing day-to-day activities and/or as restrictions in social participation.
The national listing carried out by the Central Statistical Office in 2002 identified a total of 4133 persons with disabilities among a population of 141 088, giving a disability prevalence of 2.9% within a national sampling frame.
Not all households or individuals identified through the national listing procedure were included in the final survey. Only selected enumeration areas in Matabeleland, Manicaland and Midlands are included in the results presented here. All households with disabled members were included (n=1958). These households were later revisited and comprehensive questionnaire-based interviews were carried out of the person with a disability or a proxy if they were not able to respond due to absence, age, disability or some other factor. During this exercise, the screening procedure was repeated and a total of 2071 individuals with difficulties in carrying out day-today activities were identified, thus qualifying as being disabled. This comprises 50% of those with disabilities listed nationally and 2.7% of the total listed population in the three regions. Among a total listed population in Matabeleland of 36080, 870 individuals were identified with disabilities, yielding a prevalence rate of 2.4%. In Manicaland 665 individuals with disabilities were identified among a listed population of 23319, yielding a prevalence rate of 2.9% and in Midlands 536 individuals were identified among a population of 16416, yielding a prevalence rate of 3.3%.
Due to the disproportionate allocation of the sample points to various strata, sampling weights will be required to correct for differential representation of the sample at national and subnational levels. The weights of the sample are in this case equal to the inverse of the product of the two selection probabilities employed.
Questionnaires
The questionnaires applied in the studies were originally based on two previously applied instruments: A study on living conditions in the general population in Namibia (NPC 2000) and a national disability survey carried out in South Africa (Schneider et. al., 1999). Over the years, and in particular in the first couple of studies in Namibia and Zimbabwe, a lengthy process involving all stakeholders was carried out to align the content of the questionnaires with the context and priorities of particularly the disability movement. A disability-screening instrument was included, in the early phases drawing on the discourse preceding ICF, in later phases using the WG 6 screening instruments directly. The "ICF matrix" on activity limitations, participation restrictions and environmental barriers was also included
Four separate questionnaires are applied:
i) Household study on living conditions - a set of core indicators of living conditions for all permanent members of the household (including control households)
ii) Screening for disability; WG 6
iii) Detailed Questionnaire for people with disabilities including the Activity and Participation Matrix drawn from ICF
iv) Detailed questionnaire to individuals without disability (controls)
The questionnaires are all developed in English language and translated into local language(es)
The generic household questionnaire covered the following topics:
The detailed Disability Questionnaire covered the following topics:
The Control questionnaire for individuals without disabilities is a reduced version of the questionnaire applied to individuals with disability.
Zimbabwe: Data collection questionnaires that had previously been used in Namibia (on general living conditions – NPC, 2000) and in South Africa (on disability – Schneider et. al., 1999) were combined and adapted for use in Zimbabwe. In addition, a disability-screening instrument was included as well as a matrix on activities and participation developed specifically for this study and drawing on the concepts of the ICF. The design applied in this study in Zimbabwe is similar to the design applied in the previous study in Namibia (Eide, van Rooy & Loeb, 2003), save some minor differences in formulations of certain questions.
After revision, the questionnaire comprised four key elements; i) household study on living conditions, ii) screening for disability, iii) questions to individuals with disabilities including iv) the ICF based matrix on activities and participation. The final version of the questionnaire was developed in English. Simple field tests were carried out during training leading to a few adaptations to local dialects
Start | End |
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2002 | 2003 |
Recruitment and training
Recruitment of research assistants are carried out by the responsible body in each country (e.g. Technical Team). Specific requirements for research assistants are set in each country, including minimum formal education. Individuals with disability are particularly recruited for the data collection, but the number can vary according to the strength of the national DPO. The number of research assistants and supervisors will vary according to geographical composition of a country and the size of the population.
Screening and Data collection
Research Teams of approximately 5 - 7 persons with one vehicle and a driver travel together and collect data within pre-determined geographical as for instance a Province. Screening is either carried out as a separate activity or directly linked up to the data collection in one operation. In all the sampled areas, every household is visited and the head of the household responds to the screening question. The data from the listing/screening are entered into a data entry program. Disability prevalence is calculated from this file. Any persons who are presented with at least one "some problems" in one of the WG 6 items below qualifies as being disabled. This threshold is chosen to obtain maximum sensitivity of the screening instrument, and the responses to the 6 questions can later be applied to distinguish between impairment types and severity of disability.
Among households with at least one disabled member, a pre-decided number of households in each EA is randomly sampled. Additional EAs are drawn during the sampling process to be used whenever too few households with disabled member(s) are identified in an EA.
Zimbabwe:
Data collection questionnaires that had previously been used in Namibia (on general living conditions – NPC, 2000) and in South Africa (on disability – Schneider et.al., 1999) were combined and adapted for use in Zimbabwe. In addition, a disability-screening instrument was included as well as a matrix on activities and participation developed specifically for this study and drawing on the concepts of the ICF. The design applied in this study in Zimbabwe is similar to the design applied in the previous study in Namibia (Eide, van Rooy & Loeb, 2003), save some minor differences in formulations of certain questions.
User participation was an important element in the design development. This process comprised:
i) A two-day workshop attended by around 25 professionals, researchers, people with disabilities and civil servants who discussed and tested a draft research instrument
ii) Pilot-testing of the research instrument among 150 households with and 150 households without disabilities in two high-density suburbs on the outskirts of Harare, Mbare and Sunningdale (Eide et. al., 2001b)
iii) Further revisions of the research instrument based on experience from the pilot survey and a second two-day workshop including the same resource persons and stakeholders as previously.
After revision, the questionnaire comprised four key elements;
i) household study on living conditions,
ii) screening for disability,
iii) questions to individuals with disabilities including
iv) the ICF based matrix on activities and participation.
The final version of the questionnaire was developed in English. Simple field tests were carried out during training leading to a few adaptations to local dialects.
From the onset, the target population for sampling was all private households in Zimbabwe excluding institutionalised and homeless people. Due to the circumstances in Zimbabwe at the time of initiating the research, including both security issues and a difficult and fluctuating currency market, it was decided to proceed in a stepwise fashion rather than embarking on a full National survey that, due to these circumstances, may have failed. The research exercise and data collection were thus tackled regionally, yielding population-based studies that covered Matabeleland, Manicaland and Midlands. The map on p55 of the resport (provided under the related Materials tab) indicates the geographical areas that were covered by the study.
Data collection was carried out by 4 – 5 teams in each Region, each team comprising 5 – 7 enumerators. The Principal Investigator in Zimbabwe (Dr. Nhiwatiwa) co-ordinated the exercises, supported by the Assistant Investigator (Ms. Jennifer Muderedzi). Each Team was led by a Supervisor who was responsible for the quality of the work in the field and handed in. A total of 80 – 90 enumerators were involved. Important criteria for being employed as enumerator were fluency in English as well as the relevant local languages, and education level to at least 5 good passes at O Level. Care was also taken to include persons who came from the areas where the data collection took place. Not least, efforts were made to recruit enumerators with disabilities through the participating organisations. Approximately 50 % of the enumerators were disabled.
In order to obtain a control sample of households without disabled members, the household neighbouring each of the identified households with disabled members were systematically selected. The two groups in the sample are thus representative for the population of households with and without disabled members in three Regions in Zimbabwe. The sampled households were visited by one enumerator who carried out the interview with the head of the household. It was the intention that the person identified as having a disability should respond to the disability portion of the questionnaire him/herself. This was the case in 53% of those interviewed. The remaining 47% of the disability questionnaires were completed by a proxy. If the situation arose that no one was present at a selected household, then that household was later revisited. Missing information turned out to be a minor problem, as data collection failed in few households.
The research team is responsible for organizing data entry, cleaning and submission of the data file for analyses, which is carried out by SINTEF in collaboration with the local/national research group. A final report is then produced, followed by a dissemination workshop with high-level representation and press coverage.
In Zimbabwe, all questionnaires were controlled and signed by a supervisor after the interview. Completed questionnaires were transported to Harare for data cleaning and entry. Data entry was facilitated by using the EPI INFO 6 (version 6.04b) data entry programme. Upon completion of data entry, the data were relayed to Norway and converted to SPSS format for analysis using SPSS 11.0.
Name | Affiliation | URL | |
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Southern African Federation of the Disabled | info@safod.net | www.safod.net | |
Advisor Hanne Witsø | Norwegian Federation of Disabled People (FFO) | hanne.witso@ffo.no | www.ffo.no |
Professor Arne H. Eide, Dep. of Living Conditions and Health Services | SINTEF Health Research | arne.h.eide@sintef.no | www.sintef.no |