DDI_AFR_2007-2008_INDEPTH_v01_M
Rachael Odhiambo
Kobus Herbst
2013-03-27
NADA
Edited version, the original DDI (DDI.INDEPTH.GH002.SEEDS.v1.3) was downloaded from INDEPTH Data Repository (http://www.indepth-ishare.org/index.php/catalog/central) on October 2014. The following DDI elements have been modified: DDI Document ID and survey ID.
Epidemiology and Treatment of Epilepsy in Sub-Saharan Countries 2007-2008
INDEPTH 2007-08
AFR_2007-2008_INDEPTH_v01_M
Prof C R Newton
Anthony K Ngugi
Christian Bottomley
Immo Kleinschmidt
Ryan G Wagner
Angelina Kakooza-Mwesige
Kenneth Ae-Ngibise
Seth Owusu-Agyei
Honorati Masanja
Gathoni Kamuyu
Rachael Odhiambo
Eddie Chengo
Josemir W Sander
Afolabi Sulaimon
Robert Adda
Dorean Nakamya
Jackson Francis Malugala
Rachael Odhiambo
Kobus Herbst
NADA
Wellcome Trust Senior Fellowship in Clinical Tropical Medicine
Wellcome Trust Research Programme
University of the Witwatersrand
South African Medical Research Council
National Institutes of Health, USA
Centers for Disease Control and Prevention
084538 084538
Rachael Odhiambo
Charles Newton
Cross-sectional
The study was conducted in five HDSS which are part of the International Network for the Demographic Evaluation of Populations and Their Health in Low- and Middle-Income Countries (INDEPTH). The centres were Agincourt, South Africa (August 2008-February 2009); Ifakara, Tanzania (May 2009-December 2009); Iganga/Mayuge, Uganda (February 2009-October 2009); Kilifi, Kenya (conducted between December 2007-July 2008); Kintampo, Ghana (August 2010-April 2011).
Version 01
Public Health [N01.400.550]
Rural Population [N01.600.725]
Mass Screening [N06.850.780.500]
Epilepsy, Generalized [C10.228.140.490.375]
Cross-Sectional Studies [N05.715.360.775.175.275]
Case-Control Studies [N05.715.360.775.175.200]
Age Distribution [N01.224.033]
Censuses [N01.224.175]
Ethnic Groups [N01.224.317]
Career Mobility [N01.824.175]
Employment, Supported [N01.824.245.350]
Educational Status [N01.824.196]
Background
The prevalence of epilepsy in sub-Saharan Africa appear to be higher than in other parts of the world, but estimates vary substantially for unknown reasons. We assessed the prevalence and risk factors of active convulsive epilepsy across five centres in this region.
Methods
We conducted large population-based cross-sectional and case-control studies in five Health and Demographic Surveillance System (HDSS) centres: Kilifi , Kenya (Dec 3, 2007–July 31, 2008); Agincourt, South Africa (Aug 4, 2008–Feb 27, 2009); Iganga-Mayuge, Uganda (Feb 2, 2009–Oct 30, 2009); Ifakara, Tanzania (May 4, 2009–Dec 31, 2009); and Kintampo, Ghana (Aug 2, 2010–April 29, 2011). We used a three-stage screening process to identify people with active convulsive epilepsy. Prevalence was estimated as the ratio of confirmed cases to the population screened and was adjusted for sensitivity and attrition between stages. For each case, an age-matched control individual was randomly selected from the relevant centre’s census database. Fieldworkers masked to the status of the person they were interviewing administered questionnaires to individuals with active convulsive epilepsy and control individuals to assess sociodemographic variables and historical risk factors (perinatal events, head injuries, and diet). Blood samples were taken from a randomly selected subgroup of 300 participants with epilepsy and 300 control individuals from each centre and were screened for antibodies to Toxocara canis, Toxoplasma gondii, Onchocerca volvulus, Plasmodium falciparum, Taenia solium, and HIV. 586 607 residents in the study areas were screened in stage one, of whom 1711 were diagnosed as having active convulsive epilepsy. The 1711 individuals with active convulsive epilepsy and 2032 control individuals were interviewed with questionnaires, to determine demographic, socio-economic and medical risk factors.
Africa
Demographic Surveillance Areas of participating HDSS's
The following sub-saharan countries were covered: Ghana, Kenya, South Africa, Tanzania, and Uganda.
Individual
Stage One : All individuals resident in the demographic surveillance area
Stage Two: All individuals identified in Stage One as having a history of convulsions
Stage Three: Individuals whose responses in Stage Two suggested they might have epilepsy
Randomly selected sample of resident individuals in each participating HDSS
Individuals with a diagnosis of active convulsive epilepsy following Stage Three
Sample survey data
We used a three-stage screening process to identify cases of active convulsive epilepsy. In the first stage, two screening questions were asked during a routine, door-to-door census organised by each HDSS centre. Heads of households were interviewed about whether any residents had had convulsions. In the second stage, trained lay fieldworkers administered a detailed questionnaire to individuals identified as having a history of convulsions in stage one. Individuals whose responses to the questionnaire suggested they might have epilepsy were examined during stage three by clinicians who made a final diagnosis.
To enable comparison between our three-stage method and the two-stage surveys used in other population-based studies in Africa, we selected a random population sample from each centre’s census database with the RAND() command in MySQL (Oracle, Redwood Shores, CA, USA). The questionnaire used in the second stage of the study was administered to this randomly sampled population; individuals identified as possibly having epilepsy after the questionnaire results were assessed clinically in stage three.
For each epilepsy case, an age-matched control individual was randomly selected from the relevant centre’s census database with the RAND() command. The control individuals were frequency matched by age groups: 0–5 years, 6–12 years, 13–18 years, 19–28 years, 29–49 years, and 50 years or older. In the case-control study, two or three control individuals were selected to compensate for non-response and ensure balance in the number of cases and control individuals at each centre. All control individuals were assessed by a clinician to confirm that they did not have epilepsy. Fieldworkers then administered questionnaires based on those used in previous studies to individuals identifi ed as having epilepsy and control individuals. Fieldworkers, who were masked to the status (case or control) of the person they were interviewing, gathered data on sociodemographic variables and historical risk factors (perinatal events, head injuries, and diet). Clinical history was also obtained by masked, trained clinicians (the same clinicians who made initial diagnoses) and they made a diagnosis of active convulsive epilepsy. When the study participants were younger than 18 years or had cognitive impairment, the mother or caregiver was interviewed. The questionnaires administered to mothers or caregivers included questions about antenatal (eg, severe abdominal pain, vaginal bleeding, or infection during pregnancy) and perinatal events (difficulties breathing, feeding, or crying after birth, as recalled by the mother or caregiver). Questions about consumption of alcohol and use of recreational drugs were administered to adult participants only.
Blood samples were taken from a subgroup of 300 participants with epilepsy and 300 control individuals from each centre who were randomly selected with the RAND() command. This sample size would allow detection of an odds ratio (OR) greater than 2.4, with 80% power and the assumption that 5% of control individuals had epilepsy. The samples were screened for antibodies to Toxocara canis, Toxoplasma gondii, Onchocerca volvulus, Plasmodium falciparum, Taenia solium, and HIV. Exposure was established by detection of IgG antibodies to the parasitic antigens. IgG antibodies against T canis were detected with a commercial kit (Toxocara IgG-ELISA, Cypress Diagnostics, Belgium; sensitivity 97%; specificity 78%). Anti-Toxocara IgG4 antibodies with an optical density greater than the cutoff (mean plus three standard deviations of 30 IgG-negative serum samples) were interpreted as positive. IgG antibodies against T gondii were detected with a commercial kit (Toxoplasma IgGELISA, Genesis Diagnostics, Ely, UK; 100% agreement with test samples) and were judged positive when optical density was greater than that of the positive 8 IU/mL sample in the kit. Exposure to O volvulus was established with a modification of an ELISA that detects IgG4 to the recombinant antigen Ov-16GST (sensitivity 90%; specificity 98%). A sample with an optical density greater than the cutoff (mean plus three standard deviations of 30 serum samples from the Agincourt HDSS, where onchocerciasis is not prevalent) were interpreted as positive. Exposure to malaria was established with an in-house ELISA30 that tests for IgG antibodies to crude schizont extract from a P falciparum A4 clone line, which is derived from a laboratory strain. Exposure to the larval stage (cysticercosis) and adult stage (taeniasis) of the parasite T solium was established with a Western blot (sensitivity 97%; specifi city 99%; detection of cases with two or more viable cysts in the brain) and antibodies to taeniasis (RES33 antigen; sensitivity 99%; specifi city 93%). IgG antibodies to HIV type 1 or type 2, or both, were detected with the fourth generation screening test Vironostika HIV Uniform II Ag/Ab (BioMerieux, France) according to the manufacturer’s instructions.
The survey at each site will take less than 6 months since it is anticipated that each fieldworker will visit 6-10 households per day (median size of household is 10 individuals) and the required number of fieldworkers will be employed to finish the survey within 5 months. About 6-8 subjects will be assessed each day by the clinician per day. Follow-up period for the mortality is at least 3 years. Time period is between 2008 - 2013.
Agincourt
Kilifi
Ifakara
Iganga
Kintampo
Single Cross-sectional study
Sample size calculations. With an anticipated prevalence of at least 4/1,00016,20,159,160, in a DSS of at least 60,000 subjects, the 95% limits will be 3.5-4.5/1,000 at each site, or 3.8-4.2/1000 for the sites combined. For age-specific prevalences, confidence limits will be 2.3-5.7/1,000 in the smallest age stratum (>50 years) in the smallest site.
A random population sample from each centre's census database with the RAND() command in MySQL (Oracle, Redwood Shores, CA, USA).
For each case, an age-matched control individual was randomly selected from the relevant centre's census database with the RAND() command. The control individuals were frequency matched by age groups: 0-5 years, 6-12 years, 13-18 years, 19-28 years, 29-49 years, and 50 years or older. In the case-control study, two or three control individuals were selected to compensate for non-response and ensure balance in the number of cases and control individuals at each centre. All control individuals were assessed by a clinician to confirm that they did not have epilepsy.
None reported
Proxy Respondent [proxy] & Face-to-face [ftf]
Socio-demographic - sociodemographic information, past medical history and social history.
Clinical history - clinical history information such as epilepsy record, information on epileptic drug, description of seizures and the summary.
Clinical examination - clinical examination information.
Examination summary - a summary of the clinical examination and history defining the seizures and the syndromes.
Seizure classification - classification of the seizures as described in the clinical history.
EEG - electroencephalogram read information.
The questionnaires were developed in English and were translated to the local languages as per the sites where they were administered.
A quality assurance manual containing introduction ot the surveys, standard operating procedures for pre-analytic processes and communication and consent materials was used.
The interviewers were trained on how to collect the information before the beginning of the study.
The were various questionnaires used and the duration varied according to the size.
There were six field worker collecting the data for stage two screening and there were five assessores who were collecting stage three data.
Interviews were conducted in the local langages in the different sites i.e in Kilifi Giriama languge was used.
Fieldworkers, were masked to the status (case or control) of the person they were interviewing
Interviewing was conducted by a team of 6 interviewers including a supervisor.The field supervisor collected and checked that all the forms were filled in appropriately at the end of each day. At the end of a field day, the study co-ordinator received the verified forms from the field supervisor.
Data editing took place
- during coding and checking.
- during entry and the issues found during data checking which was being done centrally was communicated to the sites where the editing was done through the data entry system after crosschecking with the questionnaires.
- during cleaning.
Stage One:
Kilifi , Kenya 99.3%
Agincourt, South Africa 99.6%
Iganga-Mayuge, Uganda 92.8%
Ifakara, Tazania 89.3%
Kintampo, Ghana 87.7%
Overall 94.5%
Stage Two
Kilifi , Kenya 94.8%
Agincourt, South Africa 94.3%
Iganga-Mayuge, Uganda 64.0%
Ifakara, Tazania 95.1%
Kintampo, Ghana 91.1%
Overall 84.1%
Stage Three
Kilifi , Kenya 84.4%
Agincourt, South Africa 92.7%
Iganga-Mayuge, Uganda 64.2%
Ifakara, Tazania 91.1%
Kintampo, Ghana 77.7%
Overall 82.0%
INDEPTH Data Repository
INDEPTH Data Repository
http://www.indepth-ishare.org/index.php/catalog/48
Cose: None
Anonymised dataset
Charles Newton
The INDEPTH SEEDS Group. Epidemiology and Treatment of Epilepsy in sub-Saharan Africa Data Set. Feb 2013. Provided by the INDEPTH Network Data Repository. www.indepth-ishare.org <http://www.indepth-ishare.org>. doi:10.7796/INDEPTH.GH002.SEEDS.v1
This data is made available for restricted licensed access under the following conditions:
1. Data and other material provided by INDEPTH SEEDS Group will not be redistributed or sold to other individuals, institutions or organisations without INDEPTH's written agreement.
2. In the case of this multi-centre datasets, data originating from a single contributing member centre may not be analysed or reported on in isolation without the express permission of the member centre concerned.
3. No attempt will be made to re-identify respondents, and there will be no use of the identity of any person or establishment discovered inadvertently. Any such discovery will be reported immediately to INDEPTH.
4. No attempt will be made to produce links between datasets provided by INDEPTH or between INDEPTH data and other datasets that could identify individuals.
5. Any books, articles, conference papers, theses, dissertations, reports or other publications employing data obtained from INDEPTH will cite the source, in line with the citation requirement provided with the dataset.
6. An electronic copy of all publications based on the requested data will be sent to INDEPTH.
7. The original collector of the data, INDEPTH, and the relevant funding agencies bear no responsibility for the data's use or interpretation or inferences based upon it.
8. The researcher's organisation must be identified, as must the principal and other researchers involved in using the data. The principal researcher must sign the license on behalf of the organization. If the principal researcher is not authorized to sign on behalf of the receiving organization, a suitable representative must be identified.
9. The intended use of the data, including a list of expected outputs and the organisation's data dissemination policy must be provided.
The user of the data acknowledges that the original collector of the data (the SEEDS Group), INDEPTH, and the relevant funding agencies bear no responsibility for the data's use or interpretation or inferences based upon it.
GH001.SEEDS.Stage2
The file contains data on epilepsy field team screening for convulsions at stage two of the cross-sectional survey as on the stage III seeds screening questionnaire.
0
39
GH001.SEEDS.Stage3_Classification
The file contains data on seizure classification at stage three of the survey as on the stage III SEEDS seizure classification questionnaire.
0
27
GH001.SEEDS.Stage3_ClinicalHistory
The file contains data on clinical history at stage three of the survey as on the stage III SEEDS clinical history questionnaire.
0
57
GH001.SEEDS.Stage3_EEG
The file contains data on Electroencephalography readings at stage three of the survey as on the stage III SEEDS EEG questionnaire.
0
21
GH001.SEEDS.Stage3_ClinicalExam
The file contains data on clinical examination at stage three of the survey as on the stage III SEEDS clinical examination questionnaire.
0
89
GH001.SEEDS.Stage3_ExamSummary
The file contains data on examination summary at stage three of the survey as on the stage III SEEDS examination summary questionnaire.
0
15
GH001.SEEDS.Stage3_Seizures
The file contains data on seizure types at stage three of the survey as on the seizure type section in the stage III SEEDS clinical history questionnaire.
0
34
GH001.SEEDS.Stage3_SocioDemography_Adult
The file contains socio-demographic data of those above 18 years at stage three of the survey as on the stage III SEEDS socio-demography above 18 questionnaire.
0
57
GH001.SEEDS.Stage3_SocioDemography_Child
The file contains socio-demographic data of those below 18 years at stage three of the survey as on the stage III SEEDS socio-demography below 18 questionnaire.
0
80
CentreId
CentreId
CentreId
CentreId
CentreId
GH021
Kintampo, Ghana
KE011
Kilifi, Kenya
TZ011
Ifakara, Tanzania
UG011
Iganga, Uganda
ZA011
Agincourt, South Africa
The participating INDEPTH Centre where the study participant was enrolled.
INDEPTH
IndividualId
IndividualId
IndividualId
IndividualId
IndividualId
Stage Two
The anonymised unique identifier of the study participant
VisitDate
VisitDate
VisitDate
VisitDate
VisitDate
The date on which the data was collected
DoB
DoB
DoB
DoB
DoB
All individuals identified in Stage One as having a history of convulsions
The date of birth of the participant
Age
Age
Age
Age
Age
age (estimated if date of birth unknown)
All individuals identified in Stage One as having a history of convulsions
The age of the individual at the time of the interview
Sex
Sex
Sex
Sex
Sex
Gender
All individuals identified in Stage One as having a history of convulsions
1
Male
2
Female
int_out
int_out
int_out
int_out
int_out
interview outcome
All individuals identified in Stage One as having a history of convulsions
1
Interview complete
2
Person not found
3
Refused
4
Sample not used
5
Dead
qchild
qchild
qchild
qchild
qchild
who will answer questions about the child.
All individuals identified in Stage One as having a history of convulsions
1
Self
2
Self and other
3
Index’s mother
4
Index’s father
5
Index’s grandmother
6
Index’s sibling
7
Another relative
8
Other
Missing
inform
inform
inform
inform
inform
is the informant one who mainly takes care of the index
All individuals identified in Stage One as having a history of convulsions
1
Yes
2
No
9
Missing
com_sht
com_sht
com_sht
com_sht
com_sht
Has the information sheet been read to the respondent?
All individuals identified in Stage One as having a history of convulsions
1
Yes
2
No
9
Missing
consent
consent
consent
consent
consent
Has the respondent consented to participate in the study?
All individuals identified in Stage One as having a history of convulsions
1
Yes
2
No
9
Missing
reas_noc1
reas_noc1
reas_noc1
reas_noc1
reas_noc1
If NO consent is given, what are the reasons given for the decline?
All individuals identified in Stage One as having a history of convulsions
reas_noc2
reas_noc2
reas_noc2
reas_noc2
reas_noc2
If NO consent is given, what are the reasons given for the decline?
All individuals identified in Stage One as having a history of convulsions
reas_noc3
reas_noc3
reas_noc3
reas_noc3
reas_noc3
If NO consent is given, what are the reasons given for the decline?
All individuals identified in Stage One as having a history of convulsions
reas_noc4
reas_noc4
reas_noc4
reas_noc4
reas_noc4
If NO consent is given, what are the reasons given for the decline?
All individuals identified in Stage One as having a history of convulsions
reas_noc5
reas_noc5
reas_noc5
reas_noc5
reas_noc5
If NO consent is given, what are the reasons given for the decline?
All individuals identified in Stage One as having a history of convulsions
fwcode
fwcode
fwcode
fwcode
fwcode
Field worker code
All individuals identified in Stage One as having a history of convulsions
havefits
havefits
havefits
havefits
havefits
Have you ever had a fit?
All individuals identified in Stage One as having a history of convulsions
1
Yes
2
No
9
Missing
somefits
somefits
somefits
somefits
somefits
Has someone ever told you that you have fits?
All individuals identified in Stage One as having a history of convulsions
1
Yes
2
No
9
Missing
epifits
epifits
epifits
epifits
epifits
Have you ever been told that you have epilepsy or epileptic fits?
All individuals identified in Stage One as having a history of convulsions
1
Yes
2
No
9
Missing
consc
consc
consc
consc
consc
Have you ever had attacks in which you fall to the ground with loss of consciousness?
All individuals identified in Stage One as having a history of convulsions
1
Yes
2
No
9
Missing
twitch
twitch
twitch
twitch
twitch
Twitching?
All individuals identified in Stage One as having a history of convulsions
1
Yes
2
No
9
Missing
shaking
shaking
shaking
shaking
shaking
Shaking of the arms or legs without control?
All individuals identified in Stage One as having a history of convulsions
1
Yes
2
No
9
Missing
wetting
wetting
wetting
wetting
wetting
Wetting or soiling yourself?
All individuals identified in Stage One as having a history of convulsions
1
Yes
2
No
9
Missing
biting
biting
biting
biting
biting
Biting of the tongue?
All individuals identified in Stage One as having a history of convulsions
1
Yes
2
No
9
Missing
drthave
drthave
drthave
drthave
drthave
Have you ever been told by a doctor that you have epilepsy or epileptic fits?
All individuals identified in Stage One as having a history of convulsions
1
Yes
2
No
9
Missing
sz_start
sz_start
sz_start
sz_start
sz_start
When did the seizures start?
All individuals identified in Stage One as having a history of convulsions
last_sz
last_sz
last_sz
last_sz
last_sz
When was the last seizure?
All individuals identified in Stage One as having a history of convulsions
sz_l5yrs
sz_l5yrs
sz_l5yrs
sz_l5yrs
sz_l5yrs
Have you ever had any seizure within the last 5 years?
All individuals identified in Stage One as having a history of convulsions
1
Yes
2
No
9
Missing
no_szs
no_szs
no_szs
no_szs
no_szs
How many seizures have you had within the last 12 months?
All individuals identified in Stage One as having a history of convulsions
sz_fill
sz_fill
sz_fill
sz_fill
sz_fill
Did all the seizures occur with febrile illness?
All individuals identified in Stage One as having a history of convulsions
1
Yes
2
No
9
Missing
medic
medic
medic
medic
medic
Are you currently taking any drugs for convulsions?
All individuals identified in Stage One as having a history of convulsions
1
Yes
2
No
9
Missing
fam_sz
fam_sz
fam_sz
fam_sz
fam_sz
who in the family have seizures
All individuals identified in Stage One as having a history of convulsions
1
Yes
2
No
9
Missing
anyb_sz
anyb_sz
anyb_sz
anyb_sz
anyb_sz
Do you know of anybody else with seizures?
All individuals identified in Stage One as having a history of convulsions
1
Yes
2
No
9
Missing
ref_eval
ref_eval
ref_eval
ref_eval
ref_eval
Should this person be referred for further evaluation?
All individuals identified in Stage One as having a history of convulsions
1
Yes
2
No
9
Missing
ctrl_st
ctrl_st
ctrl_st
ctrl_st
ctrl_st
Are you willing to be a control in this study (please explain what a control is if need be)?
All individuals identified in Stage One as having a history of convulsions
1
Yes
2
No
9
Missing
bld_samp
bld_samp
bld_samp
bld_samp
bld_samp
Are you willing to have your blood sample taken for the purpose of this study?
All individuals identified in Stage One as having a history of convulsions
1
Yes
2
No
9
Missing
agreed
agreed
agreed
agreed
agreed
Has this person agreed to come for assessment?
All individuals identified in Stage One as having a history of convulsions
1
Yes
2
No
9
Missing
rdateca
rdateca
rdateca
rdateca
rdateca
Date of referral
All individuals identified in Stage One as having a history of convulsions
CentreId
CentreId
CentreId
CentreId
CentreId
GH021
Kintampo, Ghana
KE011
Kilifi, Kenya
TZ011
Ifakara, Tanzania
UG011
Iganga, Uganda
ZA011
Agincourt, South Africa
The participating INDEPTH Centre where the study participant was enrolled.
INDEPTH
IndividualId
IndividualId
IndividualId
IndividualId
IndividualId
Stage Two
The anonymised unique identifier of the study participant
clinician
clinician
clinician
clinician
clinician
The numerical code of the clinician responsible for the assessment
ade
ade
ade
ade
ade
do we agree with the diagnosis of epilepsy?
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
9
Missing
ace
ace
ace
ace
ace
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
9
Missing
nsh
nsh
nsh
nsh
nsh
history of neonatal seizures
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
9
Missing
fsh
fsh
fsh
fsh
fsh
history of febrile seizures
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
9
Missing
loc
loc
loc
loc
loc
is there loss of consciousness
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
9
Missing
ucm
ucm
ucm
ucm
ucm
unilateral convulsive movements
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
9
Missing
ts1
ts1
ts1
ts1
ts1
type of seizure 1
Individuals who were diagnosed as having active convulsive epilepsy
AA
Atypical absence
AM
Absence & myoclonus
CS
Clonic seizures
ES
Epileptic spasms
MS
Myoclonic seizures
PA
Simple partial with autonomic signs/symptoms
PD
Simple partial with dyscognitive (complex partial)
PM
Simple partial with motor signs
PP
Simple partial with psychic symptoms
PS
Simple partial with sensory symptoms
SA
Partial evolving to secondary generalised with autonomic
SD
Partial evolving to secondary generalised with dyscognitive
SM
Partial evolving to secondary generalised with motor signs
SP
Partial evolving to secondary generalised with psychic symptoms
SS
Partial evolving to secondary generalised with sensory symptoms
TA
Typical absence
TC
Tonic-clonic
TS
Tonic seizures
US
Unclassifiable
XA
Atonic seizure
ts2
ts2
ts2
ts2
ts2
type of seizure 2
Individuals who were diagnosed as having active convulsive epilepsy
AA
Atypical absence
AM
Absence & myoclonus
CS
Clonic seizures
ES
Epileptic spasms
MS
Myoclonic seizures
PA
Simple partial with autonomic signs/symptoms
PD
Simple partial with dyscognitive (complex partial)
PM
Simple partial with motor signs
PP
Simple partial with psychic symptoms
PS
Simple partial with sensory symptoms
SA
Partial evolving to secondary generalised with autonomic
SD
Partial evolving to secondary generalised with dyscognitive
SM
Partial evolving to secondary generalised with motor signs
SP
Partial evolving to secondary generalised with psychic symptoms
SS
Partial evolving to secondary generalised with sensory symptoms
TA
Typical absence
TC
Tonic-clonic
TS
Tonic seizures
US
Unclassifiable
XA
Atonic seizure
ts3
ts3
ts3
ts3
ts3
type of seizure 3
Individuals who were diagnosed as having active convulsive epilepsy
AA
Atypical absence
AM
Absence & myoclonus
CS
Clonic seizures
ES
Epileptic spasms
FD
Focal dyscognitive
FG
Focal sec. generalised convulsive
FM
Focal motor
FS
Focal sensory
FU
Focal unspecified
GA
Generalised absence
GC
Generalised convulsive
GM
Generalised other motor
GU
Generalised Unspecified
MS
Myoclonic seizures
OI
Other impaired conscious
OM
Other motor
OU
Other unspecified
PA
Simple partial with autonomic signs/symptoms
PD
Simple partial with dyscognitive (complex partial)
PM
Simple partial with motor signs
PP
Simple partial with psychic symptoms
PS
Simple partial with sensory symptoms
SA
Partial evolving to secondary generalised with autonomic
SD
Partial evolving to secondary generalised with dyscognitive
SM
Partial evolving to secondary generalised with motor signs
SP
Partial evolving to secondary generalised with psychic symptoms
SS
Partial evolving to secondary generalised with sensory symptoms
TA
Typical absence
TC
Tonic-clonic
TS
Tonic seizures
US
Unclassifiable
XA
Atonic seizure
st1
st1
st1
st1
st1
seizure type 1
Individuals who were diagnosed as having active convulsive epilepsy
AA
Atypical absence
AM
Absence & myoclonus
CS
Clonic seizures
ES
Epileptic spasms
FD
Focal dyscognitive
FG
Focal sec. generalised convulsive
FM
Focal motor
FS
Focal sensory
FU
Focal unspecified
GA
Generalised absence
GC
Generalised convulsive
GM
Generalised other motor
GU
Generalised Unspecified
MS
Myoclonic seizures
OI
Other impaired conscious
OM
Other motor
OU
Other unspecified
PA
Simple partial with autonomic signs/symptoms
PD
Simple partial with dyscognitive (complex partial)
PM
Simple partial with motor signs
PP
Simple partial with psychic symptoms
PS
Simple partial with sensory symptoms
SA
Partial evolving to secondary generalised with autonomic
SD
Partial evolving to secondary generalised with dyscognitive
SM
Partial evolving to secondary generalised with motor signs
SP
Partial evolving to secondary generalised with psychic symptoms
SS
Partial evolving to secondary generalised with sensory symptoms
TA
Typical absence
TC
Tonic-clonic
TS
Tonic seizures
US
Unclassifiable
XA
Atonic seizure
st2
st2
st2
st2
st2
seizure type 2
Individuals who were diagnosed as having active convulsive epilepsy
AA
Atypical absence
AM
Absence & myoclonus
CS
Clonic seizures
ES
Epileptic spasms
FD
Focal dyscognitive
FG
Focal sec. generalised convulsive
FM
Focal motor
FS
Focal sensory
FU
Focal unspecified
GA
Generalised absence
GC
Generalised convulsive
GM
Generalised other motor
GU
Generalised Unspecified
MS
Myoclonic seizures
OI
Other impaired conscious
OM
Other motor
OU
Other unspecified
PA
Simple partial with autonomic signs/symptoms
PD
Simple partial with dyscognitive (complex partial)
PM
Simple partial with motor signs
PP
Simple partial with psychic symptoms
PS
Simple partial with sensory symptoms
SA
Partial evolving to secondary generalised with autonomic
SD
Partial evolving to secondary generalised with dyscognitive
SM
Partial evolving to secondary generalised with motor signs
SP
Partial evolving to secondary generalised with psychic symptoms
SS
Partial evolving to secondary generalised with sensory symptoms
TA
Typical absence
TC
Tonic-clonic
TS
Tonic seizures
US
Unclassifiable
XA
Atonic seizure
st3
st3
st3
st3
st3
seizure type 3
Individuals who were diagnosed as having active convulsive epilepsy
AA
Atypical absence
AM
Absence & myoclonus
CS
Clonic seizures
ES
Epileptic spasms
FD
Focal dyscognitive
FG
Focal sec. generalised convulsive
FM
Focal motor
FS
Focal sensory
FU
Focal unspecified
GA
Generalised absence
GC
Generalised convulsive
GM
Generalised other motor
GU
Generalised Unspecified
MS
Myoclonic seizures
OI
Other impaired conscious
OM
Other motor
OU
Other unspecified
PA
Simple partial with autonomic signs/symptoms
PD
Simple partial with dyscognitive (complex partial)
PM
Simple partial with motor signs
PP
Simple partial with psychic symptoms
PS
Simple partial with sensory symptoms
SA
Partial evolving to secondary generalised with autonomic
SD
Partial evolving to secondary generalised with dyscognitive
SM
Partial evolving to secondary generalised with motor signs
SP
Partial evolving to secondary generalised with psychic symptoms
SS
Partial evolving to secondary generalised with sensory symptoms
TA
Typical absence
TC
Tonic-clonic
TS
Tonic seizures
US
Unclassifiable
XA
Atonic seizure
pna
pna
pna
pna
pna
pre-existing neurological abnormalities
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
9
Missing
pci
pci
pci
pci
pci
cognitive impairment
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
9
Missing
pmi
pmi
pmi
pmi
pmi
motor impairment
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
9
Missing
ba
ba
ba
ba
ba
behaviour abnormalities
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
9
Missing
pse
pse
pse
pse
pse
previous status epilepticus
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
9
Missing
pfs
pfs
pfs
pfs
pfs
if yes febrile status
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
9
Missing
pns
pns
pns
pns
pns
if yes non-febrile status
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
9
Missing
hee
hee
hee
hee
hee
history of acute encephalopathy/ event
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
9
Missing
aet
aet
aet
aet
aet
aetiology
Individuals who were diagnosed as having active convulsive epilepsy
1
Genetic
2
Structural/Metabolic
3
Not determined
4
Unknown
5
Y - ?
nts
nts
nts
nts
nts
notes
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
9
Missing
nr
nr
nr
nr
nr
patient needs review
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
9
Missing
cnp
cnp
cnp
cnp
cnp
checked by neurologist/ psychiatrist
Individuals who were diagnosed as having active convulsive epilepsy
The clinician code of the neurologist/physician who checked the classification
CentreId
CentreId
CentreId
CentreId
CentreId
GH021
Kintampo, Ghana
KE011
Kilifi, Kenya
TZ011
Ifakara, Tanzania
UG011
Iganga, Uganda
ZA011
Agincourt, South Africa
The participating INDEPTH Centre where the study participant was enrolled.
INDEPTH
IndividualId
IndividualId
IndividualId
IndividualId
IndividualId
Stage Two
The anonymised unique identifier of the study participant
doa
doa
doa
doa
doa
Date of assessment
clinician
clinician
clinician
clinician
clinician
The numerical code of the clinician responsible for the assessment
he
he
he
he
he
does s/he have epilepsy
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
ae
ae
ae
ae
ae
if yes, is it active epilepsy
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
eeg
eeg
eeg
eeg
eeg
does s/he need an EEG
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
eegdate
eegdate
eegdate
eegdate
eegdate
if yes when was the EEG done?
Individuals whose responses in Stage Two suggested they might have epilepsy
se
se
se
se
se
status epilepticus
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
scd
scd
scd
scd
scd
does s/he have any sickle cell disease?
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
dm
dm
dm
dm
dm
diabetes mellitus
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
hyp
hyp
hyp
hyp
hyp
hypertension
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
stk
stk
stk
stk
stk
stroke
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
ots
ots
ots
ots
ots
other chronic diseases, specify
Individuals whose responses in Stage Two suggested they might have epilepsy
cf
cf
cf
cf
cf
has s/he ever had a fit?
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
clc
clc
clc
clc
clc
has she ever had episodes when s/he loses consciousness
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
cfg
cfg
cfg
cfg
cfg
has s/he ever fallen to the ground without a reason
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
alt
alt
alt
alt
alt
and the arms or legs twitch/ shake
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
bt
bt
bt
bt
bt
and bites the tongue
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
wh
wh
wh
wh
wh
and wets himself/ herself
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
st
st
st
st
st
have you ever noticed that s/he had episodes of shaking trembling or one arm or one leg or the face
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
bs
bs
bs
bs
bs
becoming stiff
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
lcs
lcs
lcs
lcs
lcs
loses contact with the sorrounding
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
flm
flm
flm
flm
flm
frequent loss of memory for a short period of time
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
jalb
jalb
jalb
jalb
jalb
jerking that move up his/ her arm, leg or body
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
cd
cd
cd
cd
cd
has she had episodes when s/he appears dazed?
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
ta
ta
ta
ta
ta
any complains of tummy aches
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
os
os
os
os
os
complains of smelling an odd smell
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
ss
ss
ss
ss
ss
report seeing strange things (ex. people or aura)
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
tcf
tcf
tcf
tcf
tcf
have you ever been told that you have had fits
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
dos
dos
dos
dos
dos
date of onset of seizures
Individuals whose responses in Stage Two suggested they might have epilepsy
age_o
age_o
age_o
age_o
age_o
age of onset in months
Individuals whose responses in Stage Two suggested they might have epilepsy
nst
nst
nst
nst
nst
number of different seizure types
Individuals whose responses in Stage Two suggested they might have epilepsy
Number of different seizure types. 98=many but unknown number.
ls
ls
ls
ls
ls
when was the last seizure
Individuals whose responses in Stage Two suggested they might have epilepsy
sy
sy
sy
sy
sy
how many seizures in the last year
Individuals whose responses in Stage Two suggested they might have epilepsy
Count of seizures in last year, 98=many, but unknown number
ws
ws
ws
ws
ws
when do you have seizures
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Daytime
2
Nightime
3
Both
ns
ns
ns
ns
ns
how many seizures have you ever had
Individuals whose responses in Stage Two suggested they might have epilepsy
How many seizure ever. 98 = many, but unknown number
pd
pd
pd
pd
pd
how many times per day
Individuals whose responses in Stage Two suggested they might have epilepsy
Number of seizures per day, 98=Many, but unknown number
pw
pw
pw
pw
pw
how many times per week
Individuals whose responses in Stage Two suggested they might have epilepsy
Number of seizures per week, 98=Many but unknown number
pm
pm
pm
pm
pm
how many times per month
Individuals whose responses in Stage Two suggested they might have epilepsy
Number of seizures per month, 98=Many, but unknown number
seizf
seizf
seizf
seizf
seizf
seizure frequency
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Daily
2
Weekly
3
Monthly
szp
szp
szp
szp
szp
is the seizure provoked
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
szf
szf
szf
szf
szf
if yes is it by fever
Individuals whose responses in Stage Two suggested they might have epilepsy
Missing
1
Yes
2
No
9
Missing
inf
inf
inf
inf
inf
If No, what are the precipitating factors
Individuals whose responses in Stage Two suggested they might have epilepsy
am
am
am
am
am
any medication
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
ae1
ae1
ae1
ae1
ae1
if yes which one(s)
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Phenobarbitone
2
Phenytoin
3
Carbamazepine
4
Sodium Valproate
5
Valium
6
Others
aed1
aed1
aed1
aed1
aed1
what dosage
Individuals whose responses in Stage Two suggested they might have epilepsy
ae2
ae2
ae2
ae2
ae2
if yes which one(s)
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Phenobarbitone
2
Phenytoin
3
Carbamazepine
4
Sodium Valproate
5
Valium
6
Others
aed2
aed2
aed2
aed2
aed2
what dosage
Individuals whose responses in Stage Two suggested they might have epilepsy
ctrm
ctrm
ctrm
ctrm
ctrm
Individuals whose responses in Stage Two suggested they might have epilepsy
Missing
1
Yes
2
No
9
Missing
aep1
aep1
aep1
aep1
aep1
previous anti-epileptic drug
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Phenobarbitone
2
Phenytoin
3
Carbamazepine
4
Sodium Valproate
5
Valium
6
Others
aepd1
aepd1
aepd1
aepd1
aepd1
what dosage
Individuals whose responses in Stage Two suggested they might have epilepsy
aep2
aep2
aep2
aep2
aep2
previous anti-epileptic drug
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Phenobarbitone
2
Phenytoin
3
Carbamazepine
4
Sodium Valproate
5
Valium
6
Others
aepd2
aepd2
aepd2
aepd2
aepd2
what dosage
Individuals whose responses in Stage Two suggested they might have epilepsy
dr
dr
dr
dr
dr
any drug reactions or unacceptable side effects from anti-epileptic drugs?
Individuals whose responses in Stage Two suggested they might have epilepsy
Missing
1
Yes
2
No
9
Missing
drd
drd
drd
drd
drd
drug reaction description
Individuals whose responses in Stage Two suggested they might have epilepsy
ptrm
ptrm
ptrm
ptrm
ptrm
traditional medicine
Individuals whose responses in Stage Two suggested they might have epilepsy
Missing
1
Yes
2
No
9
Missing
CentreId
CentreId
CentreId
CentreId
CentreId
GH021
Kintampo, Ghana
KE011
Kilifi, Kenya
TZ011
Ifakara, Tanzania
UG011
Iganga, Uganda
ZA011
Agincourt, South Africa
The participating INDEPTH Centre where the study participant was enrolled.
INDEPTH
IndividualId
IndividualId
IndividualId
IndividualId
IndividualId
Stage Two
The anonymised unique identifier of the study participant
doa
doa
doa
doa
doa
Date of assessment
clinician
clinician
clinician
clinician
clinician
The numerical code of the clinician responsible for the assessment
state
state
state
state
state
state
Individuals who were diagnosed as having active convulsive epilepsy
1
Cooperative
2
Uncooperative
lastmeal
lastmeal
lastmeal
lastmeal
lastmeal
last meal
Individuals who were diagnosed as having active convulsive epilepsy
The time of the last meal taken, if after 17:00 then on the previous day, otherwise on the day of the assessment.
gb
gb
gb
gb
gb
general background
Individuals who were diagnosed as having active convulsive epilepsy
1
Normal
2
Mild
3
Moderate
4
Severe
as1
as1
as1
as1
as1
asymmetry
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
Missing
9
Missing
ff
ff
ff
ff
ff
focal features
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
Missing
9
Missing
fc
fc
fc
fc
fc
if so, temporal
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
Missing
9
Missing
fp
fp
fp
fp
fp
parieto-occipital
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
Missing
9
Missing
ea
ea
ea
ea
ea
epileptiform activity (spikes, sharp waves, spike+wave, rhythmic runs)
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
Missing
9
Missing
ft
ft
ft
ft
ft
focal temporal
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
Missing
9
Missing
fe
fe
fe
fe
fe
focal extra-temporal
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
Missing
9
Missing
mf
mf
mf
mf
mf
multifocal
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
Missing
9
Missing
mt
mt
mt
mt
mt
involves temporal lobe
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
Missing
9
Missing
gn
gn
gn
gn
gn
generalised
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
Missing
9
Missing
ph1
ph1
ph1
ph1
ph1
photosensitivity: abnormal response
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
Missing
9
Missing
hy1
hy1
hy1
hy1
hy1
hyperventilation: abnormal response
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
Missing
9
Missing
of
of
of
of
of
other features
Individuals who were diagnosed as having active convulsive epilepsy
1
Yes
2
No
Missing
9
Missing
sum
sum
sum
sum
sum
summary
Individuals who were diagnosed as having active convulsive epilepsy
1
Normal
2
Abnormal
3
Undetermined
CentreId
CentreId
CentreId
CentreId
CentreId
GH021
Kintampo, Ghana
KE011
Kilifi, Kenya
TZ011
Ifakara, Tanzania
UG011
Iganga, Uganda
ZA011
Agincourt, South Africa
The participating INDEPTH Centre where the study participant was enrolled.
INDEPTH
IndividualId
IndividualId
IndividualId
IndividualId
IndividualId
Stage Two
The anonymised unique identifier of the study participant
doa
doa
doa
doa
doa
Date of assessment
clinician
clinician
clinician
clinician
clinician
The numerical code of the clinician responsible for the assessment
wt
wt
wt
wt
wt
weight
Individuals whose responses in Stage Two suggested they might have epilepsy
Weight of the person in kilograms
hc
hc
hc
hc
hc
ofc
Individuals whose responses in Stage Two suggested they might have epilepsy
Occipital Frontal Circumference measured in centimetres
muac
muac
muac
muac
muac
muac
Individuals whose responses in Stage Two suggested they might have epilepsy
Mid upper arm circumference (MUAC) in centimetres
ht
ht
ht
ht
ht
height
Individuals whose responses in Stage Two suggested they might have epilepsy
Height in centimetres
hd
hd
hd
hd
hd
handedness
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Right
2
Left
3
Undetermined
sks
sks
sks
sks
sks
skull shape
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Abnormal
3
Undetermined
fa
fa
fa
fa
fa
facial appearance
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Dysmorphic
ncf
ncf
ncf
ncf
ncf
any features of neurofibromatosis
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
nct
nct
nct
nct
nct
any features of tuerous sclerosis
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
ncs
ncs
ncs
ncs
ncs
any scratch marks
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
ncn
ncn
ncn
ncn
ncn
any nodules
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
jan
jan
jan
jan
jan
jaundice
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
lym
lym
lym
lym
lym
lymphadenopathy
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
lymd
lymd
lymd
lymd
lymd
Individuals whose responses in Stage Two suggested they might have epilepsy
bcg
bcg
bcg
bcg
bcg
BCG scar
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
hf
hf
hf
hf
hf
hand and feet
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Abnormal
3
Undetermined
bp_systolic
bp_systolic
bp_systolic
bp_systolic
bp_systolic
systolic blood pressure in mmHg
Individuals whose responses in Stage Two suggested they might have epilepsy
bp_diastolic
bp_diastolic
bp_diastolic
bp_diastolic
bp_diastolic
blood pressure diastolic in mmHg
Individuals whose responses in Stage Two suggested they might have epilepsy
rps
rps
rps
rps
rps
respiratory system
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Abnormal
3
Undetermined
cds
cds
cds
cds
cds
cardiovascular system
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Abnormal
3
Undetermined
orp
orp
orp
orp
orp
mental state exam person
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
9
Missing
Missing
orpl
orpl
orpl
orpl
orpl
mental state exam place
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
9
Missing
Missing
ort
ort
ort
ort
ort
mental state exam time
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
9
Missing
Missing
abm
abm
abm
abm
abm
does s/he have any burn marks?
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
9
Missing
Missing
abmw
abmw
abmw
abmw
abmw
if so, where?
Individuals whose responses in Stage Two suggested they might have epilepsy
pt
pt
pt
pt
pt
ptosis
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
9
Missing
Missing
pu
pu
pu
pu
pu
pupils
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Abnormal
3
Undetermined
Missing
sq
sq
sq
sq
sq
squint
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
9
Missing
Missing
swe
swe
swe
swe
swe
which eye
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Right
2
Left
3
Both
ny
ny
ny
ny
ny
nystagmus
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
9
Missing
Missing
fw
fw
fw
fw
fw
facial weakness
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
9
Missing
Missing
fs
fs
fs
fs
fs
forehead stonger than lower face?
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
9
Missing
Missing
umc
umc
umc
umc
umc
Uvula: is central
Individuals whose responses in Stage Two suggested they might have epilepsy
Missing
1
Yes
2
No
9
Missing
ud
ud
ud
ud
ud
Uvula: deviates to
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Right
2
Left
3
Undetermined
td
td
td
td
td
tongue deviation
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
9
Missing
Missing
st
st
st
st
st
size of tonsils
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Enlarged
2
Normal
aw
aw
aw
aw
aw
arm wasting
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
9
Missing
Missing
aww
aww
aww
aww
aww
if so where
Individuals whose responses in Stage Two suggested they might have epilepsy
at
at
at
at
at
arm tone
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Increased
3
Decreased
ac
ac
ac
ac
ac
arm contractures
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
9
Missing
Missing
acw
acw
acw
acw
acw
if so where
Individuals whose responses in Stage Two suggested they might have epilepsy
ap
ap
ap
ap
ap
arm power (MRC 0-5)
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Abnormal
3
Grossly
lw
lw
lw
lw
lw
legs wasting
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
9
Missing
Missing
lww
lww
lww
lww
lww
if so where
Individuals whose responses in Stage Two suggested they might have epilepsy
lt
lt
lt
lt
lt
leg tone
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Increased
3
Decreased
lc
lc
lc
lc
lc
leg contractures
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
9
Missing
Missing
lcw
lcw
lcw
lcw
lcw
if so where
Individuals whose responses in Stage Two suggested they might have epilepsy
lp
lp
lp
lp
lp
leg power
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Abnormal
3
Grossly
br
br
br
br
br
reflexes biceps right
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Increased
3
Decreased
bl
bl
bl
bl
bl
reflexes biceps left
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Increased
3
Decreased
kr
kr
kr
kr
kr
reflexes knee right
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Increased
3
Decreased
kl
kl
kl
kl
kl
reflexes knee left
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Increased
3
Decreased
ar
ar
ar
ar
ar
reflexes ankle right
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Increased
3
Decreased
al
al
al
al
al
reflexes ankle left
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Increased
3
Decreased
pr
pr
pr
pr
pr
reflexes planter right
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Increased
3
Decreased
pl
pl
pl
pl
pl
reflexes planter left
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Increased
3
Decreased
fn
fn
fn
fn
fn
co-ordination finger-nose
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Abnormal
3
Undetermined
pp
pp
pp
pp
pp
co-ordination piano playing
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Abnormal
3
Undetermined
ddk
ddk
ddk
ddk
ddk
co-ordination hand flapping
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Abnormal
3
Undetermined
ft
ft
ft
ft
ft
co-ordination fog test
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Abnormal
3
Undetermined
gn
gn
gn
gn
gn
co-ordination gait
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Abnormal
3
Undetermined
gnw
gnw
gnw
gnw
gnw
if abnormal, describe
Individuals whose responses in Stage Two suggested they might have epilepsy
ur
ur
ur
ur
ur
ears auroscope examination right
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Abnormal
3
Wax
ul
ul
ul
ul
ul
ears auroscope examination left
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Abnormal
3
Wax
omr
omr
omr
omr
omr
ears otitis media right
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
3
Wax
oml
oml
oml
oml
oml
ears otitis media left
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
3
Wax
oer
oer
oer
oer
oer
ears otitis externa right
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
3
Wax
oel
oel
oel
oel
oel
ears otitis externa left
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
3
Wax
ct
ct
ct
ct
ct
eyes cataracts
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
9
Missing
Missing
cwe
cwe
cwe
cwe
cwe
if so, which eye
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Right
2
Left
3
Both
4
None
eab
eab
eab
eab
eab
eyes other abnormality
Individuals whose responses in Stage Two suggested they might have epilepsy
Missing
1
Yes
2
No
9
Missing
eabd
eabd
eabd
eabd
eabd
if so, describe
Individuals whose responses in Stage Two suggested they might have epilepsy
fe
fe
fe
fe
fe
fundoscope examination fundi seen
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
9
Missing
Missing
fr
fr
fr
fr
fr
fundoscope examination right
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Abnormal
3
Not seen
fl
fl
fl
fl
fl
fundoscope examination left
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Abnormal
3
Not seen
tn
tn
tn
tn
tn
any toxocara nodules in the eyes
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
9
Missing
Missing
aom
aom
aom
aom
aom
any other observation and medical history
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
9
Missing
Missing
aom1
aom1
aom1
aom1
aom1
observation1
Individuals whose responses in Stage Two suggested they might have epilepsy
aom2
aom2
aom2
aom2
aom2
observation2
Individuals whose responses in Stage Two suggested they might have epilepsy
aom3
aom3
aom3
aom3
aom3
observation3
Individuals whose responses in Stage Two suggested they might have epilepsy
cbs
cbs
cbs
cbs
cbs
has consent been given for the blood sample?
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
9
Missing
Missing
bst
bst
bst
bst
bst
has the blood sample been taken
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
9
Missing
Missing
eld
eld
eld
eld
eld
does s/he have evidence of learning difficulties
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
9
Missing
Missing
exnd
exnd
exnd
exnd
exnd
does s/he have any neurological deficits
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
9
Missing
Missing
exct
exct
exct
exct
exct
does s/he need neuroimaging
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
9
Missing
Missing
CentreId
CentreId
CentreId
CentreId
CentreId
GH021
Kintampo, Ghana
KE011
Kilifi, Kenya
TZ011
Ifakara, Tanzania
UG011
Iganga, Uganda
ZA011
Agincourt, South Africa
The participating INDEPTH Centre where the study participant was enrolled.
INDEPTH
IndividualId
IndividualId
IndividualId
IndividualId
IndividualId
Stage Two
The anonymised unique identifier of the study participant
doa
doa
doa
doa
doa
Date of assessment
clinician
clinician
clinician
clinician
clinician
The numerical code of the clinician responsible for the assessment
ae
ae
ae
ae
ae
does s/he fulfill the definition of AE?
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
fnd
fnd
fnd
fnd
fnd
does s/he have focal neurological deficits
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
egd
egd
egd
egd
egd
Does s/he need a EEG
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
cts
cts
cts
cts
cts
Does s/he need a CT scan
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
bt
bt
bt
bt
bt
has the blood been taken
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
ts1
ts1
ts1
ts1
ts1
type of seizure 1
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Partial Simple Complex
2
Complex Partial
3
Secondary Partial
4
Generalised Absence
5
Tonic-clonic/Grandmal
6
Atonic Attacks
7
Tonic Attacks
8
Myoclonic Seizures
9
Unclassifiable
ts2
ts2
ts2
ts2
ts2
type of seizure 2
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Partial Simple Complex
2
Complex Partial
3
Secondary Partial
4
Generalised Absence
5
Tonic-clonic/Grandmal
6
Atonic Attacks
7
Tonic Attacks
8
Myoclonic Seizures
9
Unclassifiable
ts3
ts3
ts3
ts3
ts3
type of seizure 3
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Partial Simple Complex
2
Complex Partial
3
Secondary Partial
4
Generalised Absence
5
Tonic-clonic/Grandmal
6
Atonic Attacks
7
Tonic Attacks
8
Myoclonic Seizures
9
Unclassifiable
es1
es1
es1
es1
es1
Epileptic syndrome 1
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Focal Idiopathic
2
Focal Complex Partial
3
Focal Secondary Generalised
4
Generalised Idiopathic
5
Generalised Cryptogenic
6
Generalised Symptomatic
7
Undetermined
8
Special Syndromes
es2
es2
es2
es2
es2
Epileptic syndrome 2
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Focal Idiopathic
2
Focal Complex Partial
3
Focal Secondary Generalised
4
Generalised Idiopathic
5
Generalised Cryptogenic
6
Generalised Symptomatic
7
Undetermined
8
Special Syndromes
es3
es3
es3
es3
es3
Epileptic syndrome 3
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Focal Idiopathic
2
Focal Complex Partial
3
Focal Secondary Generalised
4
Generalised Idiopathic
5
Generalised Cryptogenic
6
Generalised Symptomatic
7
Undetermined
8
Special Syndromes
CentreId
CentreId
CentreId
CentreId
CentreId
GH021
Kintampo, Ghana
KE011
Kilifi, Kenya
TZ011
Ifakara, Tanzania
UG011
Iganga, Uganda
ZA011
Agincourt, South Africa
The participating INDEPTH Centre where the study participant was enrolled.
INDEPTH
IndividualId
IndividualId
IndividualId
IndividualId
IndividualId
Stage Two
The anonymised unique identifier of the study participant
ko
ko
ko
ko
ko
Does s/he know it is going to occur (Ex. Goes to another person)?
Individuals who have had seizures
1
Yes
2
No
Missing
9
Missing
ab
ab
ab
ab
ab
Individuals who have had seizures
1
Yes
2
No
Missing
9
Missing
bu
bu
bu
bu
bu
Becomes unresponsive (not answer questions, disobey commands)
Individuals who have had seizures
1
Yes
2
No
Missing
9
Missing
fg
fg
fg
fg
fg
Falls to the ground
Individuals who have had seizures
1
Yes
2
No
Missing
9
Missing
tn
tn
tn
tn
tn
Talks nonsense
Individuals who have had seizures
1
Yes
2
No
Missing
9
Missing
dw
dw
dw
dw
dw
Does not know where s/he is
Individuals who have had seizures
1
Yes
2
No
Missing
9
Missing
hp
hp
hp
hp
hp
Hallucinations; parasthesiae
Individuals who have had seizures
1
Yes
2
No
Missing
9
Missing
am
am
am
am
am
Automatisms: Swallowing, grimacing, fiddling, gestures, vocalisations, walking
Individuals who have had seizures
1
Yes
2
No
Missing
9
Missing
op
op
op
op
op
Other phenomena: Fear, weeping abdominal, déjà vu
Individuals who have had seizures
1
Yes
2
No
Missing
9
Missing
cs
cs
cs
cs
cs
Which side?
Individuals who have had seizures
1
Both
2
Right
3
Left
4
Unsure
9
Missing
cm
cm
cm
cm
cm
Which limb?
Individuals who have had seizures
1
Both
2
Arms
3
Legs
9
Missing
cp
cp
cp
cp
cp
Partial
Individuals who have had seizures
1
Face
2
Lips
3
Hands
9
Missing
bk
bk
bk
bk
bk
Blank Stare
Individuals who have had seizures
1
Yes
2
No
Missing
9
Missing
sa
sa
sa
sa
sa
Stares Ahead
Individuals who have had seizures
1
Yes
2
No
Missing
9
Missing
ed
ed
ed
ed
ed
Deviate:
Individuals who have had seizures
1
Upwards
2
Right
3
Left
4
Unsure
9
Missing
jm
jm
jm
jm
jm
Jerking movements
Individuals who have had seizures
1
Yes
2
No
Missing
9
Missing
li
li
li
li
li
Lips involved
Individuals who have had seizures
1
No
2
Smacking
3
Licking
bg
bg
bg
bg
bg
Bites tongue
Individuals who have had seizures
1
Yes
2
No
Missing
9
Missing
we
we
we
we
we
Wets self
Individuals who have had seizures
1
Yes
2
No
Missing
9
Missing
so
so
so
so
so
Soils self
Individuals who have had seizures
1
Yes
2
No
Missing
9
Missing
du
du
du
du
du
Duration (in minutes)
Individuals who have had seizures
1
Yes
2
No
Missing
9
Missing
dy
dy
dy
dy
dy
Drowsy
Individuals who have had seizures
1
Yes
2
No
Missing
9
Missing
sp
sp
sp
sp
sp
Sleeps
Individuals who have had seizures
1
Yes
2
No
Missing
9
Missing
he
he
he
he
he
Headache
Individuals who have had seizures
1
Yes
2
No
Missing
9
Missing
an
an
an
an
an
Abnormal behaviour
Individuals who have had seizures
1
Yes
2
No
Missing
9
Missing
pa
pa
pa
pa
pa
Paralysis
Individuals who have had seizures
1
Yes
2
No
Missing
9
Missing
ds
ds
ds
ds
ds
Disturbance of sleep
Individuals who have had seizures
1
Yes
2
No
Missing
9
Missing
sl
sl
sl
sl
sl
Speech and language difficulties (Aphasia)
Individuals who have had seizures
1
Yes
2
No
Missing
9
Missing
re
re
re
re
re
Does s/he remember the episode?
Individuals who have had seizures
1
Yes
2
No
Missing
9
Missing
nu
nu
nu
nu
nu
Number per day
Individuals who have had seizures
Number of episodes per day, 98 indicates unknown number but frequent
nm
nm
nm
nm
nm
Number Per Month
Individuals who have had seizures
Number of episodes per month, 98 indicates unknown number but frequent
aws
aws
aws
aws
aws
Age when Started (months)
Individuals who have had seizures
Age when started in months
CentreId
CentreId
CentreId
CentreId
CentreId
GH021
Kintampo, Ghana
KE011
Kilifi, Kenya
TZ011
Ifakara, Tanzania
UG011
Iganga, Uganda
ZA011
Agincourt, South Africa
The participating INDEPTH Centre where the study participant was enrolled.
INDEPTH
IndividualId
IndividualId
IndividualId
IndividualId
IndividualId
Stage Two
The anonymised unique identifier of the study participant
tdate
tdate
tdate
tdate
tdate
Individuals whose responses in Stage Two suggested they might have epilepsy
Date of data collection
resp
resp
resp
resp
resp
who will answer questions about the index
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Self
2
Self and other
3
Index's mother
4
Index's father
5
Index's grandmother
6
Index's sibling
7
Another relative
8
Other
inform
inform
inform
inform
inform
is the informant one who mainly takes care of the index
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
com_sht
com_sht
com_sht
com_sht
com_sht
has the information sheet been read to the respondent?
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
consent
consent
consent
consent
consent
has the respondent consented to participate in the study?
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
reas_noc1
reas_noc1
reas_noc1
reas_noc1
reas_noc1
if no consent is given, what are the reasons given for the decline?
Individuals whose responses in Stage Two suggested they might have epilepsy
reas_noc2
reas_noc2
reas_noc2
reas_noc2
reas_noc2
if no consent is given, what are the reasons given for the decline?
Individuals whose responses in Stage Two suggested they might have epilepsy
reas_noc3
reas_noc3
reas_noc3
reas_noc3
reas_noc3
if no consent is given, what are the reasons given for the decline?
Individuals whose responses in Stage Two suggested they might have epilepsy
reas_noc4
reas_noc4
reas_noc4
reas_noc4
reas_noc4
if no consent is given, what are the reasons given for the decline?
Individuals whose responses in Stage Two suggested they might have epilepsy
reas_noc5
reas_noc5
reas_noc5
reas_noc5
reas_noc5
if no consent is given, what are the reasons given for the decline?
Individuals whose responses in Stage Two suggested they might have epilepsy
int_code
int_code
int_code
int_code
int_code
interviewer code
Individuals whose responses in Stage Two suggested they might have epilepsy
mst
mst
mst
mst
mst
marital status
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Never married
2
Married
3
Separated
4
Divorced
5
Widowed
rela
rela
rela
rela
rela
religious affiliation
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Catholic
2
Protestant
3
Islam
4
Traditional
5
Zion Church
6
None
7
Other
eg
eg
eg
eg
eg
ethnic group
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Shangaan
2
Sipulana
3
Mpogoro
4
Mndamba
5
Mngindo
6
Mbena
7
Mngoni
8
Basoga
9
Langis
10
Banyankole
11
Baganga
12
Bagwere
13
Bakiga
14
Karamajong
15
Bagisu
16
Itesot
17
Acholis
18
Lugubar
19
Japadhola
20
Samias
21
Akan
22
Bomoba
23
Chokosi
24
Dagardi
25
Frafra
26
Kusasi
27
Grushie
28
Fulani
29
Pantra
30
Ga
31
Ewe
32
Adangbe
33
Sisala
34
Wala
35
Gonja
36
Dagomba
37
Mamprusi
38
Konkomba
39
Basare
40
Mo
41
Zabrama
42
Banda
43
Giriama
44
Chonyi
45
Kauma
46
Other Mijikendas
47
Luos
99
Others
attsch
attsch
attsch
attsch
attsch
has s/he ever attended school?
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
3
Don't know
levedu
levedu
levedu
levedu
levedu
if yes, what is the highest level of education?
Individuals whose responses in Stage Two suggested they might have epilepsy
1
None
2
Primary incomplete
3
Primary
4
Secondary incomplete
5
Junior secondary
6
Senior secondary/A levels
7
Post secondary
8
University
9
Other
olevedu
olevedu
olevedu
olevedu
olevedu
if other specify
Individuals whose responses in Stage Two suggested they might have epilepsy
ecac
ecac
ecac
ecac
ecac
does s/he do anything to earn cash
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
occ
occ
occ
occ
occ
if yes, what is her/ his occupation
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Prof/Technical
2
Adm/Mngt
3
Clerical
4
Agriculture
5
Production
6
Services
7
Crafts
8
Unemployed
9
Other
occoth
occoth
occoth
occoth
occoth
if other, please specify
Individuals whose responses in Stage Two suggested they might have epilepsy
dc
dc
dc
dc
dc
are there dogs in your household
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
3
Don't know
9
Missing
cc
cc
cc
cc
cc
are there cats in your household
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
3
Don't know
9
Missing
ep
ep
ep
ep
ep
do you eat pork
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
3
Don't know
9
Missing
es
es
es
es
es
do you eat soil
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
3
Don't know
9
Missing
sw
sw
sw
sw
sw
do you snore more than 3 nights a week
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
3
Don't know
9
Missing
sf
sf
sf
sf
sf
does anyone have seizures (fits) in the family
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
sfp
sfp
sfp
sfp
sfp
has anyone in the family ever had seizures (fits) in the past
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
bss
bss
bss
bss
bss
do any of your brothers or sisters have seizures
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
ms
ms
ms
ms
ms
has your mother had seizures
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
fs
fs
fs
fs
fs
has your father had seizures
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
saf
saf
saf
saf
saf
does anyone of your family have seizures associated with fever
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
saf_desc
saf_desc
saf_desc
saf_desc
saf_desc
please describe
Individuals whose responses in Stage Two suggested they might have epilepsy
dl
dl
dl
dl
dl
where was the delivery
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Hospital
2
Clinic
3
Home
4
Don't know
9
Missing
nad
nad
nad
nad
nad
delivery
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Abnormal
9
Missing
nadp
nadp
nadp
nadp
nadp
If abnormal, what was the problem?
Individuals whose responses in Stage Two suggested they might have epilepsy
pad
pad
pad
pad
pad
were there any problems after delivery
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
padp
padp
padp
padp
padp
if so what
Individuals whose responses in Stage Two suggested they might have epilepsy
hap
hap
hap
hap
hap
has s/he been admitted to hospital previously
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
dgs1
dgs1
dgs1
dgs1
dgs1
for what
Individuals whose responses in Stage Two suggested they might have epilepsy
doa1
doa1
doa1
doa1
doa1
when admitted
Individuals whose responses in Stage Two suggested they might have epilepsy
dgs2
dgs2
dgs2
dgs2
dgs2
for what
Individuals whose responses in Stage Two suggested they might have epilepsy
doa2
doa2
doa2
doa2
doa2
when admitted
Individuals whose responses in Stage Two suggested they might have epilepsy
dgs3
dgs3
dgs3
dgs3
dgs3
for what
Individuals whose responses in Stage Two suggested they might have epilepsy
doa3
doa3
doa3
doa3
doa3
when admitted
Individuals whose responses in Stage Two suggested they might have epilepsy
hi
hi
hi
hi
hi
has s/he ever had a head injury
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
3
Don't know
9
Missing
hid
hid
hid
hid
hid
if yes, what did it happen
Individuals whose responses in Stage Two suggested they might have epilepsy
hic
hic
hic
hic
hic
if yes, did s/he lose consciousness
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
3
Don't know
9
Missing
hia
hia
hia
hia
hia
was s/he admitted to hospital
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
3
Don't know
9
Missing
da
da
da
da
da
do your drink alcohol
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
dadur
dadur
dadur
dadur
dadur
if yes, for how long have you been drinking
Individuals whose responses in Stage Two suggested they might have epilepsy
ecas
ecas
ecas
ecas
ecas
do you often eat cassava
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
udrgs
udrgs
udrgs
udrgs
udrgs
have you ever used drugs
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
orh
orh
orh
orh
orh
other relevant history
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
orhd
orhd
orhd
orhd
orhd
please describe
Individuals whose responses in Stage Two suggested they might have epilepsy
kdury
kdury
kdury
kdury
kdury
how long have you lived in your current location (in year)?
Individuals whose responses in Stage Two suggested they might have epilepsy
CentreId
CentreId
CentreId
CentreId
CentreId
GH021
Kintampo, Ghana
KE011
Kilifi, Kenya
TZ011
Ifakara, Tanzania
UG011
Iganga, Uganda
ZA011
Agincourt, South Africa
The participating INDEPTH Centre where the study participant was enrolled.
INDEPTH
IndividualId
IndividualId
IndividualId
IndividualId
IndividualId
Stage Two
The anonymised unique identifier of the study participant
tdate
tdate
tdate
tdate
tdate
date
Individuals whose responses in Stage Two suggested they might have epilepsy
sch
sch
sch
sch
sch
does she attend school
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
resp
resp
resp
resp
resp
who will answer questions about the index
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Self
2
Self and other
3
Index's mother
4
Index's father
5
Index's grandmother
6
Index's sibling
7
Another relative
8
Other
infct
infct
infct
infct
infct
is the informant one who mainly takes care of the index patient?
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
com_sht
com_sht
com_sht
com_sht
com_sht
has the information sheet been read to the respondent?
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
consent
consent
consent
consent
consent
has the respondent consented to participate in the study?
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
reas_noc1
reas_noc1
reas_noc1
reas_noc1
reas_noc1
if no consent is given, what are the reasons given for the decline?
Individuals whose responses in Stage Two suggested they might have epilepsy
reas_noc2
reas_noc2
reas_noc2
reas_noc2
reas_noc2
if no consent is given, what are the reasons given for the decline?
Individuals whose responses in Stage Two suggested they might have epilepsy
reas_noc3
reas_noc3
reas_noc3
reas_noc3
reas_noc3
if no consent is given, what are the reasons given for the decline?
Individuals whose responses in Stage Two suggested they might have epilepsy
reas_noc4
reas_noc4
reas_noc4
reas_noc4
reas_noc4
if no consent is given, what are the reasons given for the decline?
Individuals whose responses in Stage Two suggested they might have epilepsy
reas_noc5
reas_noc5
reas_noc5
reas_noc5
reas_noc5
if no consent is given, what are the reasons given for the decline?
Individuals whose responses in Stage Two suggested they might have epilepsy
fwc
fwc
fwc
fwc
fwc
interviewer
Individuals whose responses in Stage Two suggested they might have epilepsy
mdob
mdob
mdob
mdob
mdob
mother's date of birth
Individuals whose responses in Stage Two suggested they might have epilepsy
momage
momage
momage
momage
momage
mother's age
Individuals whose responses in Stage Two suggested they might have epilepsy
momrel
momrel
momrel
momrel
momrel
mother's religious affiliation
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Catholic
2
Protestant
3
Islam
4
Traditional
5
Zion Church
6
None
7
Other
mommst
mommst
mommst
mommst
mommst
marital status
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Never married
2
Married
3
Separated
4
Divorced
5
Widowed
momeg
momeg
momeg
momeg
momeg
mother's ethnic group
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Shangaan
2
Sipulana
3
Mpogoro
4
Mndamba
5
Mngindo
6
Mbena
7
Mngoni
8
Basoga
9
Langis
10
Banyankole
11
Baganga
12
Bagwere
13
Bakiga
14
Karamajong
15
Bagisu
16
Itesot
17
Acholis
18
Lugubar
19
Japadhola
20
Samias
21
Akan
22
Bomoba
23
Chokosi
24
Dagardi
25
Frafra
26
Kusasi
27
Grushie
28
Fulani
29
Pantra
30
Ga
31
Ewe
32
Adangbe
33
Sisala
34
Wala
35
Gonja
36
Dagomba
37
Mamprusi
38
Konkomba
39
Basare
40
Mo
41
Zabrama
42
Banda
43
Giriama
44
Chonyi
45
Kauma
46
Other Mijikendas
47
Luos
99
Others
momsch
momsch
momsch
momsch
momsch
has the mother ever attended school?
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
3
Don't know
9
Missing
momledu
momledu
momledu
momledu
momledu
if yes, what is the mother's highest level of education
Individuals whose responses in Stage Two suggested they might have epilepsy
1
None
2
Primary incomplete
3
Primary
4
Secondary incomplete
5
Junior secondary
6
Senior secondary/A levels
7
Post secondary
8
University
9
Other
omomledu
omomledu
omomledu
omomledu
omomledu
if other please specify
Individuals whose responses in Stage Two suggested they might have epilepsy
patsch
patsch
patsch
patsch
patsch
has the partner ever attended school
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
3
Don't know
9
Missing
patledu
patledu
patledu
patledu
patledu
patner's level of education
Individuals whose responses in Stage Two suggested they might have epilepsy
1
None
2
Primary incomplete
3
Primary
4
Secondary incomplete
5
Junior secondary
6
Senior secondary/A levels
7
Post secondary
8
University
9
Other
opatledu
opatledu
opatledu
opatledu
opatledu
if other please specify
Individuals whose responses in Stage Two suggested they might have epilepsy
momecac
momecac
momecac
momecac
momecac
does the mother do anything to earn cash?
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
3
Don't know
9
Missing
momocc
momocc
momocc
momocc
momocc
if yes, what is the mother's occupation?
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Prof/Technical
2
Adm/Mngt
3
Clerical
4
Agriculture
5
Production
6
Services
7
Crafts
8
Unemployed
9
Other
moccoth
moccoth
moccoth
moccoth
moccoth
if other, please specify
Individuals whose responses in Stage Two suggested they might have epilepsy
patecac
patecac
patecac
patecac
patecac
does her partner do anything to earn cash?
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
3
Don't know
9
Missing
patocc
patocc
patocc
patocc
patocc
if yes, what is his occupation
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Prof/Technical
2
Adm/Mngt
3
Clerical
4
Agriculture
5
Production
6
Services
7
Crafts
8
Unemployed
9
Other
poccoth
poccoth
poccoth
poccoth
poccoth
if other, please specify
Individuals whose responses in Stage Two suggested they might have epilepsy
agebirth
agebirth
agebirth
agebirth
agebirth
mother's age at first birth
Individuals whose responses in Stage Two suggested they might have epilepsy
Mother's age at birth in years, 99=unknown
ceb
ceb
ceb
ceb
ceb
number of children ever born
Individuals whose responses in Stage Two suggested they might have epilepsy
clwm
clwm
clwm
clwm
clwm
number of children living with mother
Individuals whose responses in Stage Two suggested they might have epilepsy
clelse
clelse
clelse
clelse
clelse
number of children living elsewhere
Individuals whose responses in Stage Two suggested they might have epilepsy
cdead
cdead
cdead
cdead
cdead
number of children dead
Individuals whose responses in Stage Two suggested they might have epilepsy
falive
falive
falive
falive
falive
is the father alive
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
fcade
fcade
fcade
fcade
fcade
if he died, what did he die from?
Individuals whose responses in Stage Two suggested they might have epilepsy
sf
sf
sf
sf
sf
does anyone have seizures (fits) in the family
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
sfp
sfp
sfp
sfp
sfp
has anyone in the family ever had seizures (fits) in the past
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
bss
bss
bss
bss
bss
do any of your brothers or sisters have seizures
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
ms
ms
ms
ms
ms
has your mother had seizures
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
fs
fs
fs
fs
fs
has your father had seizures
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
saf
saf
saf
saf
saf
does anyone of your family have seizures associated with fever
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
saf_desc
saf_desc
saf_desc
saf_desc
saf_desc
please describe
Individuals whose responses in Stage Two suggested they might have epilepsy
np
np
np
np
np
pregnancy
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Abnormal
npp
npp
npp
npp
npp
if abnormal what was the problem
Individuals whose responses in Stage Two suggested they might have epilepsy
dl
dl
dl
dl
dl
where was the delivery
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Hospital
2
Clinic
3
Home
4
Don't know
9
Missing
nad
nad
nad
nad
nad
delivery
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Normal
2
Abnormal
9
Missing
nadp
nadp
nadp
nadp
nadp
Individuals whose responses in Stage Two suggested they might have epilepsy
pad
pad
pad
pad
pad
where was the delivery
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
padw
padw
padw
padw
padw
were there any problems after delivery
Individuals whose responses in Stage Two suggested they might have epilepsy
dbr
dbr
dbr
dbr
dbr
did the baby have difficulties in breathing
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
dcry
dcry
dcry
dcry
dcry
did the baby have difficulties in crying after delivery
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
dfeed
dfeed
dfeed
dfeed
dfeed
did the baby have difficulties in breast feeding after delivery
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
hap
hap
hap
hap
hap
has s/he been admitted to hospital previously
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
dgs1
dgs1
dgs1
dgs1
dgs1
for what
Individuals whose responses in Stage Two suggested they might have epilepsy
doa1
doa1
doa1
doa1
doa1
when
Individuals whose responses in Stage Two suggested they might have epilepsy
dgs2
dgs2
dgs2
dgs2
dgs2
for what
Individuals whose responses in Stage Two suggested they might have epilepsy
doa2
doa2
doa2
doa2
doa2
when
Individuals whose responses in Stage Two suggested they might have epilepsy
dgs3
dgs3
dgs3
dgs3
dgs3
for what
Individuals whose responses in Stage Two suggested they might have epilepsy
doa3
doa3
doa3
doa3
doa3
when
Individuals whose responses in Stage Two suggested they might have epilepsy
hi
hi
hi
hi
hi
has s/he ever had a head injury
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
3
Don't know
9
Missing
hic
hic
hic
hic
hic
if yes, did s/he lose consciousness
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
3
Don't know
9
Missing
hia
hia
hia
hia
hia
was s/he admitted to hospital
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
3
Don't know
9
Missing
ecas
ecas
ecas
ecas
ecas
do you often eat cassava
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
udrgs
udrgs
udrgs
udrgs
udrgs
have you ever used drugs
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
dc
dc
dc
dc
dc
are there any dogs in your compound
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
3
Don't know
9
Missing
cc
cc
cc
cc
cc
are there anycats in your compound
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
3
Don't know
9
Missing
ep
ep
ep
ep
ep
does your child eat pork
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
3
Don't know
9
Missing
es
es
es
es
es
does your child eat soil
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
3
Don't know
9
Missing
sw
sw
sw
sw
sw
does your child snore more than 3 nights per week
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
3
Don't know
9
Missing
orh
orh
orh
orh
orh
other relevant history
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
Missing
9
Missing
orhd
orhd
orhd
orhd
orhd
Individuals whose responses in Stage Two suggested they might have epilepsy
bw
bw
bw
bw
bw
birth weight
Individuals whose responses in Stage Two suggested they might have epilepsy
bwc
bwc
bwc
bwc
bwc
weight at first visit to clinic
Individuals whose responses in Stage Two suggested they might have epilepsy
cim
cim
cim
cim
cim
completed immunization
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
3
Don't know
9
Missing
gc
gc
gc
gc
gc
growth curve
Individuals whose responses in Stage Two suggested they might have epilepsy
1
Yes
2
No
3
Don't know
9
Missing
scomm
scomm
scomm
scomm
scomm
comments
Individuals whose responses in Stage Two suggested they might have epilepsy
kdury
kdury
kdury
kdury
kdury
how long have you lived in your current location (in years)?
Individuals whose responses in Stage Two suggested they might have epilepsy