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Free State HIV/AIDS Household Impact Study 2001-2004

South Africa, 2001 - 2004
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Reference ID
ZAF_2001-2004_HIV_v01_M
Producer(s)
Professor Frikkie Booysen
Metadata
DDI/XML JSON
Created on
Mar 24, 2013
Last modified
Mar 29, 2019
Page views
28524
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  • Identification
  • Version
  • Scope
  • Coverage
  • Producers and sponsors
  • Sampling
  • Survey instrument
  • Data collection
  • Data Access
  • Disclaimer and copyrights
  • Contacts
  • Metadata production

    • Identification

    Survey ID number

    ZAF_2001-2004_HIV_v01_M
    Title

    Free State HIV/AIDS Household Impact Study 2001-2004
    Country
    Name Country code
    South Africa ZAF
    Study type

    Other Household Health Survey [hh/hea]
    Kind of Data

    Sample survey data [ssd]
    Unit of Analysis

    Households

    Version

    Version Description

    Edited, anonymous dataset for public distribution

    Scope

    Topics
    Topic Vocabulary
    HIV/AIDS World Bank
    Health World Bank
    Poverty World Bank
    Public Sector World Bank

    Coverage

    Geographic Coverage

    The survey was conducted in two local communities in the Free State province, one urban (Welkom) and one rural (Qwaqwa), in which the HIV/AIDS epidemic is particularly rife. Welkom and
    Qwaqwa are situated in the Lejweleputswa and Thabo Mofutsanyane districts of the Free State province.
    Universe

    All memebers of the Household

    Producers and sponsors

    Primary investigators
    Name Affiliation
    Professor Frikkie Booysen University of the Free State
    Funding Agency/Sponsor
    Name Role
    United Nations Development Program Sponsor
    Australian Government Overseas Aid Program Sponsor
    Department for International Development Sponsor
    United States Agency for International Development Sponsor
    National Research Foundation - South Africa Sponsor
    Andrew W. Mellon Foundation Sponsor through SALDRU
    Other Identifications/Acknowledgments
    Name Affiliation Role
    Joint Economics, AIDS and Poverty Programme (JEAPP) African Asian Society Administrator

    Sampling

    Sampling Procedure

    The household impact of HIV/AIDS was assessed by means of a cohort study of households affected by the disease. The survey was conducted in two local communities in the Free State province, one urban (Welkom) and one rural (Qwaqwa), in which the HIV/AIDS epidemic is particularly rife. Welkom and Qwaqwa are situated in the Lejweleputswa and Thabo Mofutsanyane districts of the Free
    State province.

    Affected households were sampled purposively via NGOs and other organizations involved in AIDS counselling and care and at baseline included at least one person known to be HIV-positive or
    known to have died from AIDS in the past six months. Informed consent was obtained from the infected individual(s) or their caregivers (in the case of minors). In order to explore the socio-economic impact on affected households of repeated occurrences of HIV/AIDS-related morbidity or mortality, a distinction is made between affected households in general and affected households that have
    experienced morbidity or mortality more frequently. Non-affected households represent households living in close proximity to affected households. These households at baseline did not include persons suffering from tuberculosis or pneumonia. The incidence of morbidity and mortality is considerably higher in affected households.

    Affected households were sampled purposively via NGOs and other organizations involved in AIDS counselling and care and at baseline included at least one person known to be HIV-positive or
    known to have died from AIDS in the past six months. Informed consent was obtained from the infected individual(s) or their caregivers (in the case of minors). In order to explore the socio-economic impact on affected households of repeated occurrences of HIV/AIDS-related morbidity or mortality, a distinction is made between affected households in general and affected households that have
    experienced morbidity or mortality more frequently. Non-affected households represent households living in close proximity to affected households. These households at baseline did not include persons suffering from tuberculosis or pneumonia. The incidence of morbidity and mortality is considerably higher in affected households.
    Response Rate

    During the first wave of interviews a total of 404 interviews were conducted. During the second wave of data collection, interviews were conducted with 385 households, which translates into an attrition rate of 4.7% (19 households). During wave III, a total of 354 households were interviewed, with 31 households not being reinterviewed (7.7% of the original sample). In wave IV, 55 new households wererecruited into the study, with particular emphasis on an effort to recruit child-headed households into the survey insofar as the sample to date did not include any such households. During waves IV, V and VI a total of 3, 13 and 9 households respectively could not be re-interviewed.

    The payment of a minimal participation fee (R150 per household per survey visit) to those households interviewed in each wave, following
    the interview and distributed in the form of food parcels, contributed to ensuring sustainability of the sample over the three-year period. The dataset includes data for 331 households interviewed in each of the six rounds of interviews. In almost 90 percent of cases the reasons for attrition are related to migration, given that this study did not intend to follow those households that move outside of the two immediate
    study areas, i.e. Welkom and Qwaqwa. In the majority of cases, attrition can be ascribed to the failure to establish the current whereabouts of the particular household during follow-up, while in a third of cases it could be established that the household had moved to another country, another province, or another town in the Free State province. Less than ten percent of households had refused to participate in subsequent waves. The reasons for attrition in the original sample illustrate the manner in which migration and the disintegration of households, which are important effects of the epidemic, can act to erode the sample population.

    Survey instrument

    Questionnaires

    Household Questionnaire

    Data collection

    Dates of Data Collection
    Start End Cycle
    2001-05 2001-06 Round 1
    2001-11 2001-12 Round 2
    2002-07 2002-08 Round 3
    2003-07 2003-08 Round 4
    2004-05 2004-06 Round 5

    Data Access

    Access authority
    Name Affiliation URL Email
    Professor Frikkie Booysen UFS BooysenF.EKW@mail.uovs.ac.za
    DataFirst University of Cape Town http://www.datafirst.uct.ac.za BooysenF.EKW@mail.uovs.ac.za
    Confidentiality
    Is signing of a confidentiality declaration required? Confidentiality declaration text
    yes The User agrees that he/she will not attempt to link nor permit others to attempt to link the records of persons in this dataset with personally identifiable records from any other source. The User agrees that he/she will not attempt to use nor permit others to use the dataset to learn the identity of any person included in any set. The User agrees that he/she will not contact nor permit others to contact persons in the dataset to question, verify or discuss data in the dataset.
    Access conditions

    1. The User agrees that the sponsors of this research are the owners of the dataset.

    2. The use of the dataset in research communication, scholarly papers, journals and the like is encouraged, but the authors of these communications and documents are required to acknowledge/cite the sponsors as the source of the data. All research outputs, whether published electronically or in hard copy, must include the following acknowledgement as footnote to the title of the paper/report: "This research project, carried out by the Centre for Health Systems Research & Development at the University of the Free State, is jointly sponsored by the UNDP and the foreign development agencies of Australia (AusAID), the United Kingdom (DFID) and the United States (USAID) and administered by the Joint Economics, AIDS and Poverty Programme (JEAPP) of the African Asian Society under a subcontract from Nathan Associates Inc. Other research support includes a research grant from the National Research Foundation (NRF) and a Mellon Foundation grant from SALDRU, University of Cape Town. The views presented
      in this paper are those of the author(s) and should not be attributed to the sponsors. In addition, a copy of any document produced from the dataset for publication or other forms of circulation, including electronic media, should be submitted to the project coordinator (see details below).

    3. The use of the dataset is not restricted and researchers can pass the dataset on to other researchers. However, these prospective Users must complete the attached user agreement, must inform the project coordinator of the proposed analyses, and must obtain permission to release their findings from the project coordinator. 4. The User agrees that any use of the dataset or reliance by the User on any of the
      data is at the User’s own risk and that the sponsors and University of the Free State shall not be liable for any loss or damage howsoever arising as a result of such use.

    4. The User acknowledges that the data were collected by the Centre for Health Systems Research & Development of the University of the Free State for research and information purposes and there could be discrepancies, errors or omissions in any or all of the data.

    5. The User agrees that he/she will not attempt to link nor permit others to attempt to link the records of persons in this dataset with personally identifiable records from any other source.

    6. The User agrees that he/she will not attempt to use nor permit others to use the dataset to learn the identity of any person included in any set.

    7. The User agrees that he/she will not contact nor permit others to contact persons in the dataset to question, verify or discuss data in the dataset.

    8. The User agrees that he/she will make no statement nor permit others to make statements indicating or suggesting that interpretations drawn are those of the sponsors or of the University of the Free State.

    9. The User agrees that his/her signature indicates his/her agreement to comply with the above-stated requirements.
    Citation requirements

    Use of the dataset must be acknowledged using a citation which would include:

    • the Identification of the Primary Investigator
    • the title of the survey (including country, acronym and year of implementation)
    • the survey reference number
    • the source and date of download

    Disclaimer and copyrights

    Disclaimer

    The user of the data acknowledges that the original collector of the data, the authorized distributor of the data, and the relevant funding agency bear no responsibility for use of the data or for interpretations or inferences based upon such uses.
    Copyright

    University of the Free State

    Contacts

    Contacts
    Name Affiliation Email URL
    Professor Frikkie Booysen University of the Free State BooysenF.EKW@mail.uovs.ac.za
    DataFirst University of Cape Town info@data1st.org http://www.datafirst.uct.ac.za

    Metadata production

    DDI Document ID

    DDI_ZAF_2001-2004_HIV_v01_M
    Producers
    Name Affiliation Role
    Professor Frikkie Booysen University of the Free State Metadata producer
    DataFirst University of Cape Town DDI Production
    Date of Metadata Production

    2011-03-31

    Metadata version

    DDI Document version

    Version 1 (March 2011)
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